Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
The FIBRO WELCOME PACKAGE is something we have worked on for over 10 years.It is constantly changing and updated..I do alot of the research, writing and editing but we have MANY people working on it...Including a Social Security expert, several writers, a graphic designer and a doctor who reviews all medical information..so it is a lot more than just another fibro site.
We used to send the information out by email but it just got to be too much..
This version has only been online since July and we have had well over 5000 visitors to our site already!.
Hugs, Micki
http://www.fibrowelcomepackage.com
I just checked out your site and it is exactly what I have been looking for. I am real new to the Fibro diagnosis. First I was diagnosed with Lupus, then MS, then I was tested for Lyme's. Now my drs. are saying it is Fibro. It has been a very long path. I bought a book called Fibromyalgia for Dummies, written by Roland Staud, a doctor at Shands in Gainesville, FL. I am trying to get in to see him, but his first appointment is April.
I am also filing for SSDI. I have been denied three times (initial, reconsideration, and hearing judge). The appeals counsil overturned the hearing judge's decision and remanded it for rehearing. That was in June 2006. We still don't have a hearing date and in the meantime my diagnosis change. This process (medical and SSDI) is very frustrating.
Again thanks for the info on the sight. I think it is very important to those of us that are new to this.
micki
hugs
hugs