Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I went to a new rheumy today. The specialist treating my fibro thinks I have lupus and wanted me to see a rheumy. It was hard to find one that would take my Medicaid, but I did. Looking at the same bloodwork as other docs, she determined, with little exam, that I don't have lupus, but Sjogren's Syndrome. NOW she will do more bloodwork...
Anyway, she grinned at me when talking about the fibro and asked if I knew about the new treatment for fibro. She said it's better than meds or pt. All I need is proper sleep and...get this...exercise! She added that, since I take meds that are to help with sleep, all I need to do is get exercise. I was so dumbfounded, I didn't know what to say to her. I know what I will say for the next appt...
Anyway, she grinned at me when talking about the fibro and asked if I knew about the new treatment for fibro. She said it's better than meds or pt. All I need is proper sleep and...get this...exercise! She added that, since I take meds that are to help with sleep, all I need to do is get exercise. I was so dumbfounded, I didn't know what to say to her. I know what I will say for the next appt...
I am so sorry your in the confusement loop. I hate that part of this.
I have ended up with two different appt. with two different Rheumatologist. One in Sept. and one in Oct. lol I am kind of thinking of going to both appt. if that is allowed. Will need to ask my Dr. on Friday.
Seeing her about my psoriasis. It is in a bad state right now.
And if sleep is all we needed to be better then I would be great. Normally I sleep all the time. lol Can't take med. so sleep is what I do when pain get too much for me.
And I do exercise daily for 30 to 60 min. a day normally, I am feeling better over all, but the pain it brings on is out of this world. Why can't others just get it, we are not like the healthy ones that can exercise and feel great after wards, the Dr. think this will give me more energy, and maybe over all I feel better, but after exercising, I am sore, and boy I mean sore.
I need to nap after wards most days, 20 min. usually will help be get beyond the sever pain, and it's will only be a dull ache.
Hmmm, trial and error, that is the way I do things, then move on to something different.
I hope you find some one that will be able to help you find a good balance.
Gentle hugs, Sherrall
LMAO....thanks for the laugh!!
you're not gonna see that doc again are you? that's just nuts.
I was told to exersise and sleep OH and loose weight!!!! I can't sleep so that is out, and I chase 2 kids around all day clean etc There is my exersise, Nope I am still in pain! Yet I intend on getting on that exersise bike that is collecting dust, but I loose interest when I am so stiff and in pain! SO I am still FAT. But those are not cures there is no cure I pretty much told my last do where and how to shove it!
You should try to find a phisiatrist a pain management doc that is who I see for the fibro... she has no bed side manner but She is a Great doc... Good luck sweetie
There is to much unknown yet about FM.... but maybe someone should alert the pharmaceutical that there is a new treatment now that we no longer need them to try to find us help.
Take care gentle hugs to all