Fibromyalgia Support Group
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Ok this may be long if so I appolagize in advance. I don't really remember what my main talk was going to be. I know alot of you have ra as well as fibro. I take Cymbalta, Lyrica 75 mg.3 times a day (usually only twice), Mobic,Zyrtec, Vitamin D,and Visatril(?)if needed for overwhelming. Was taking other vitamins and fish oil but ran out as well as money. Tomorrow I am applying for Medicaid again. The difference now is I no longer have income and am apealing disability. I'm praying I get medicaid and can find a Rhuemy that takes medicaid.
Now I set you guys up,I guess my question is going to be am I normal? I was on my feet all day Thanksgiving running a taste table at a Christmas Tree Farm. Since then I have pretty much stayed in my recliner. I wonder am I just feeling sorry for myself. The owner of the farm(who just bought me the new stove)knows of my nightmares and doesn't want me working. My car insurance is about to cancel. My lack of income has really hurt and I know alot of you can relate. So, am I just feeling sorry for myself.
However, my feet are hurting. On the outside of my big toe and at the base of it the bone feels bruised. I also have this feeling sometime along the outerside of my foot opposite of the big toe. My knee caps feel like they are going to give way if I make a quick sharp turn. My ankles feel like they are going to give way. My hipps just ache all the time. I told my husband, I think yesterday,my memory can't remember if something happened today or yesterday. My eyesight,between dry and blurriness,has really worsened.I do use real tears when I think about them and then remember to put them in. Worse than all of this, I have always handled our finances but it's so depressing and the money is not there so I have done nothing. I really need to get with it but I don't know how.
Told yall it would be long and I still don't know what it was about but I welcome your replies.
Love,hugs, and prayer TW
Now I set you guys up,I guess my question is going to be am I normal? I was on my feet all day Thanksgiving running a taste table at a Christmas Tree Farm. Since then I have pretty much stayed in my recliner. I wonder am I just feeling sorry for myself. The owner of the farm(who just bought me the new stove)knows of my nightmares and doesn't want me working. My car insurance is about to cancel. My lack of income has really hurt and I know alot of you can relate. So, am I just feeling sorry for myself.
However, my feet are hurting. On the outside of my big toe and at the base of it the bone feels bruised. I also have this feeling sometime along the outerside of my foot opposite of the big toe. My knee caps feel like they are going to give way if I make a quick sharp turn. My ankles feel like they are going to give way. My hipps just ache all the time. I told my husband, I think yesterday,my memory can't remember if something happened today or yesterday. My eyesight,between dry and blurriness,has really worsened.I do use real tears when I think about them and then remember to put them in. Worse than all of this, I have always handled our finances but it's so depressing and the money is not there so I have done nothing. I really need to get with it but I don't know how.
Told yall it would be long and I still don't know what it was about but I welcome your replies.
Love,hugs, and prayer TW
I have been keeping you in my prayers as I know from your posts that you certainly have had a lot to deal with and financial issues only add fuel to the fire.
I was doing fairly well for the Thanksgiving holiday, also and the last few days have been flairing. I was so hoping to get my tree up today...but, this can wait.
It is ok to vent...i just had a very good friend tell me this...she has Fibro also and keeps me sane. :) We need support!
I just want you to know I think of you and keep you on my prayer list and I know how frustrating the system can be.
I still get so sad thinking I had to go thru all my retirement b/4 finally getting SSDI. You will get there...it is a process...not fair...but, stay committed to it and it will happen for you. Hang in there and i hope you feel better soon! Big hugs and prayers. Love~Tory
i just tell myself everyday that i'm happy for my family and that things could be worse. it keeps me going.
also with all the meds i'm on a side effects and then add the fatigue and fibro fog i can't remember if i injured myself, where i put my keys, if i already asked my step kid to put away his laudry and got my 2 year old his glass of water that he was asking for a half hr ago LOL! i'm a mess!
then i have my good days where i can almost get my house presentable.
I have to write everything down or i forget it. sometimes i call the same friend twice in a row cause i forgot i just called her!
you poor thing, i feel you , i really do.
i'm sorry i don't have much advice, i just wanted to let you know your not alone!
That was not long at all!!! I have been in bed most the day! Thanksgiving, I did a little shopping only 2 stores, the second one I needed the walker for. And I can't tell you what two stores I went to...I would say LOL, but it's not funny. I feel sad about it. I didn't have the energy to make any meals today. So, your recliner sounds inviting :) I was in my bed the first half of the day and am now in my recliner only because my son just got out of the hospital and I don't want him on the couch alone. I agree with Tory that things will work out for you with SSDI and finances - I won't even go there...the 2 shoe express will not work for me though. Another LOL...but $220k plus in medical expenses leaves you pretty broke...or I should say bankrupt.
It really stinks working hard your whole life and being stripped of your most basic needs, um, like your senses : \ O....that was a big hug for you =] and I will keep praying that the day comes why we are all relieved of our suffering,
I keep thinking that I am going to pack my bags and move to AZ where the weather is much kinder to my body. But, I am willing to do whatever the good Lord has in store for me.
HUGE hugs TW and keep on keepin on!
Eva
This illness is the pits. For alot of us it's impossible to work and for me like alot of others I had to watch my savings get eaten up by medical bills.
It's hard to go from being healthy and being able to support yourself. To being sick and not knowing how your going to pay the bills.
I manage to keep my spirts up most of the time but there are days I want to just throw in the towel but I just hang in there and I get that fighting spirit back. It's just one of those illnesses that has alot of ups and downs and the world keeps going with you or without you.
Sorry I'm kind of in a down slump today but tomorrow will be better.
Sending Hugs & Prayers that things get better for you soon.
Mary
like our hair & make-up & nails & just be goofy! & tell ea other our darkest secrets & crashes we had back in school & our furture plans! SAD to said but you are normal but does dimish the pauin you indure every sec of the day! Strong & brave Lady! i would not even be able to work one min!
healing prayers & angels to watch & guide you!
oxo paula
Oh and Paula I would love to have a huge pj party with all of you.
Of course I would shower and change my pjs first seeing how I have been in mine since Thanksgiving night.LOL TW