Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Muscles & Bones
/ Fibromyalgia Support Group

I'm not lazy. I'm just in pain...

WNB125
WNB125

Let me start off by saying i'm new here so i'm not used to this kind of thing. Anyways lately my fibromyalgia is causing me to be so tired. I end up sleeping most of the night and way into the day. When i wake up i feel so slugish and it's so hard to focus/concentrate on anything. I feel so bad mentally and phsycially because mentally i have mental health problems which get worse during these kinds of fibro situations. I just feel like i'm letting everyone down (which my family tells me i'm not) but i still feel guilty. I'm trying so hard to stay strong and not to give up (which i will keep going no matter what) it's just very frustrating. I feel like i'm trapped inside of my own body. My brain wants to do one thing but my body says no we are not doing anything today. I get irritated too easily when i'm sore and in a lot of pain so i lash out sometimes at my family who doesn't deserve that. My immedant family is my support system. They are always there no matter what happens. I'm 18 years old and can't work due to the severity of my fibro which is mixed with severe anxiety, severe depression, and so many more things. It's so hard to miss out on almost everything because of my problems. I feel so left out and alone. I mean i have my family but i dont like to say anything negitive about myself because i know it hurts them plus they have so many other things to worry about. I do not have any friends due to other issues so i can not talk to a "friend" what I'm thinking. I'll probably post on here to help get things out. I'm sorry if im annoying or very confusing. I'm not here to have anyone feel sorry for me or for anyone's attention. I just want to get things out of my head, maybe learn somethings, socialize with people who may understand me, and maybe even help someone who's feeling like me. Please stay strong everyone

Community LeaderLeo
Leo
Welcome! And no sort-of apologies for posting here. That's why we're here. All of us. We rant and rave and whine and moan all the time. Daily, in fact, b/c hey, pain is daily. It exhausts us. Fatigue is common. If the pain isn't doing it, the meds can. I have epiepsy and PTSD atop the fibro, and that alone can make me feel like I'm this awful person, despite assurances. Everything you describe is normal for someone in serious daily pain. I've been in pain that actually made me grateful for *fibro* pain (odd as that sounds), but htat doesn't make the fibro pain any less real.

We here have a daily check-in (check us out, lurk, post, don't post, whatever) to make sure we all have a place to go every day with our fibro worries, everyday concerns, frustrations, you name it. It's been here longe rthan I have, and I've been on DS FIbro since 2010, and it's a wonderful place to share and care.

Our go=to book is Fibro for Dummies, and we've all gone through a lot of rule-out tests from neurologists, rheumatologists, etc., and be sure the docs aren't mis-diagnosing or missing something else. Sometimes fibro is secondary to or along wtih something like rheumatoid arthritis, or (umpteen other things).

Anyway, hello and welcome!
twinmomab
twinmomab
Welcome to the group. You came to the right place. We all post for the support and we know you don't want the attention, you want to not feel alone, that's why we are here. I hope you find this group as helpful as it has been for me. Don't get me wrong I still feel very alone, I think that's just fibro, but I thank God everyday for these people, and I pray for them often. I'm sorry you got fibro at such a young age. I can't imagine. I got it after the birth of my twin girls 6 yrs ago, I'm 36 now. It's so painful and hard living a normal life when everything gives me anxiety, and I feel so overwhelmed every day. We have a fun group that meets every morning in a daily check-in hosted by Leo, I hope you stop by each day to say hi. Please don't feel alone, we know exactly how you feel.
WNB125
WNB125
Wow i have only been on here for a whole night and i already feel supported and loved and so welcomed. Thank you all so much for being so kind and understanding. You have no clue how much it means to me to have people who are so nice and understanding around me. I will try to stop in daily to say hi and check on everyone. Thank you againg for everything
ConfidenceBuilder
ConfidenceBuilder
I am so sorry your in pain but I can see that you have a good heart. There is nothing wrong with you sharing your feelings because we can be lifted up by others to help and support you. You're a very positive person and who is strong, I can see this by your words. I am no doctor but live a lifestyle of eating healthy and understand pain because I took martial arts for 4 years (it hurts to have someone hit you while sparing, lol). I would encourage you to read a book called the Daniels Diet because it teaches foods you can eat that will help with pain reduction. Building the body up just by eating a different diet will reduce your pain levels considerably.
Time2livelife
Time2livelife
Hey.i could have wrote this myself.i have bad mental health issues too. Its major hard to cope with.im currently suicidal cos of all this. I just wrote in my post about what i miss out socially, i hadnt read ur post before i posted mine but we have kinda said the same. Hugs.ur not alone.
changing
changing
Hope you guys will keep talking! Keep venting. We are here and maybe been going through it for a while or can bring some other insights that may help.
Don't underestimate yourself. You have so much future ahead. Flares may go down and pain will get better new treatments will keep coming out as time goes on. I'm hopeful for the future!
Keep moving. Keep talking. Keep going!!
Feel better.
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