Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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I hate it when people say........and a vent

milily
milily
My husbands answer to my extreme pain in my hands is you are getting older. Well my hands first got bad when I was in my early thirties. In fact that is where my fibro started is in one hand and then the other and then progressed from there. He just doesnt get the wrath fibro can have on a particular area. I want to clobber him - good thing we will get a break from each other soon when I go out of town. And more good news - he might go to Korea in Sept for work. I like life alot more when we are away from each other - we probably will divorce eventually. We dont get along. I feel like I have to fight fibro everyday and him - it is too much. We have tried counseling and he has been to many of my Drs appts. He thinks I am on disability to be a housewife and be responsible for everything aound here. We have been together since I was eighteen - a year shy of 30 years. I dont think I can wait until death do us part - it will be more like divorce do us part.
horseluvnhoosier
horseluvnhoosier
My fibro started in my hands the exact same way. I feel your pain both from the fibro and the hubby. Mine says he understands and then complains that I'm not "interested" like I used to be. DUH! I feel like I have been hit by a Mack truck and I'm just trying to get through the day (I work full time and care for my mom) so that I can collapse at night. We fight about it all the time. This disease is so hard on a relationship. I am envious of those that have a nice, supportive spouse.
PeaceN2You
PeaceN2You
On the way back from a conference in April that was high in the mountains, my hands suddenly started to feel like knives were going through them. I assume it had something to do with the quick change in elevation.

Hands have an amazing number of muscles and nerves. When they hurt it's really bad. Anybody who blows it off has never had hand pain.

But then that kind of describes how people respond to fibro generally. They just don't get it.
mynameisD
mynameisD
I hope you find peace and pain free hands.
Hugs
deleted_user
deleted_user
I am not currently involved in a relationship, but I saw my sister today and recently we have been spending more time together, in fact, I had to see the dentist and she does chair side for my dentist/family friend. During that visit the dentist had walked away and I was left in one position too long. Needless to say, the tears just started running my cheeks. Today my sister said to me she never realized how bad it can be for people with fibro/chronic pain. I am sorry your husband isn't being more supportive. Could counseling help and would you and your husband be open to it? This disease causes so many changes and when you got married your spouse probably had a different idea of what life would be like as I am sure did as well. None of us ever factor in a chronic condition. So, perhaps through counseling you could start figuring out the new life together and allow each other to mourn the loss. I don't mean to be preachy and I don't know anything about you and your husband, I just know alot about loss and with fibro we do loose the life that we once had and we have to reinvent a new life. It isn't easy.