Just hang in there, go to a rheumotolgist let him do all his bloodwork to rule everything else out. If you need MRIs, catscans whatever needs to be done.
If you have the tenderpoints and widespread pain thats a standout for fibro.

I think we all have different ways our pain started but everyone needs to get to a specialist and let them run all their test ruling everything out before dxing fibro,.

Hope you get the help you need

HEllo,Steph, and welcome to you. What a beautiful little girl!

My pain started in my lower back, then neck, shoulders and upper back. Then I started noticing my arms hurting me along with elbow pain.

From there it traveled to include legs, feet, and ankles. So I would say it started in one or two places, then slowly spread, to where now I pretty much hurt all over.

Throw into the mix depression, twitching, fatigue, sleeping problems. I agree to go to a rheumy for diagnosis and possibly treatment. But I ended up going back to my GP for treatment, because he knows me best and is great to work with.

Best of luck to you, and keep us posted.

Hugs, Elizabeth

Hi Steph

Welcome and I hope that you get a good diagnosis soon. Just knowing helps!

My fibro started after I had a case of Mono in my early 30s. My legs hurt like crazy and never stopped after I recovered from mono. Then other musles, tendons, etc. became affected, but it was a long time before I actually received my diagnosis.

Hang in there. We are here!

Welcome to DS. I hope your Dr. finds the answers soon. Or get a Rhuemy. Best of luck to you.

Thanks ladies. I do have a rheumy....saw him last month after my regular dr ran some preliminary bloodwork. All the blood work came back negative, so the rheumy is hoping that what I have is some hormonal issue from the pregnancy that will work itself out. He did give me a script for more extensive bloodwork, which I am probably going to have done in a few weeks. He will see me in April after the blood work. He didn;t want to do the blood work so soon since it was negative, and he said we will do x-rays and such as well in April if I am not feeling well still. He thinks its possibly Lupus, the regular dr said maybe RA, so who knows. Thanks for the help. All these problems are so similar that I get confused and I hope to get a diagnosis soon so that they can treat me appropriately and I can start feeling better.

Mine also started from Mono then when the symptoms didnt go away they started looking for something else that was wrong. Then they took out my gallbladder then i had complications. Only after about a year of all this did they figure out that all of this was probably fibro. I did indded have mono and my gallbladder did need removed but the pain I was having never went away or really changed and it was from the fibro all along. It was a feeling that something was wrong and when they kept finding different things I felt relieved but it was never over and it was a nightmare. I was in a lot of pain and the original pain was still there. But finally I got to a good pain clinic that believed me. I had been to 2 before that thought it was all in my head and I finally got my diagnosis. Keep trying and dont give up, someone will find it.
alena

Mine was all triggered from a virus that usually hits kids, called Fifth disease or human parovirus B-19.

You may want to ask if they checked for that in your blood work along with Lyme disease, just to rule them out.

My pain started out with intense joint pain for about a 14 months and then it morphed into muscle pain. The virus really shot my ANA levels up so they first thought it was Lupus, then RA and now fibro.

I did have mono as a teen so that could have been a contributing factor for not handling this new virus. Not to mention that when I got the virus I had just gotten married and moved into hubby's house with his 4 full time kids! My immune system wasn't exactly up to par that time.

I've heard many say that it was a trauma/accident or surgery that started the cascade of events leading to fibro.

Mine started when I was about 10 or 11. I was tested countless times for the same thing. They initally said it was just "growing pains". I remember just feeling sore all the time, esp in my legs and hips. Then when I was around 15/16 my doctor said I had poor circulation in my legs and my ligaments were "loose", meaning my muscles were super tight but my ligaments in my legs were like spaghetti noodles. Then around 17/18 I finally saw a Rhumy and she said it was Fibro. Now, I'm almost 25 and it has been getting progressively worse pretty fast. Limited mobility bcause of pain...most of the pain came from my legs and lower back. Usually at night I get pain at the base of my neck and sometimes turns into a migraine. Noise sensitivity... the works.
It's a long process to pin down what meds or treatments work for you, but hang in there. We're all supportive here and we know what you're going through! :)

Uh, I think the doctor at 15/16 was more right. That sounds like a connective tissue disorder, which presumably would be the cause of the fibromyalgia. Symptoms often become noticeable around that age.