Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I think I have to grieve the loss of the old me before I can accept the new me. And then try to make the new me the best I can, and accept that... whereever it may lie.
I Do pretty Good on a Consistent Basis as long as I Just Pace..the whole Hare & Fox Routine if you will..
Hugs..
I hate that when I come home from work I ache from head to toe. Once I sit down, I am done. It takes me three days to do laundry. I make of list of things to do and well actually the first thing is lose it. Then I make another one and am able to get through a couple of things.
I made a goal yesterday. I am going to do one extra thing each day. Maybe I will get it all done. I can only hope.
Hugs a lot.
i understand!!!!!...yes,if we push,we pay,our new normal is not so good at all...the things that help me is to know i have some things to give in my life,wich makes me happy...its in giving a listening ear...it may not sound like much but with my limitations,theres not much more i can give.
i have two little blessings who i give attention to,even though its just playing games in my bed,watching a movie,or funny vidioes on youtube,..its still giving and they appreciate it...
its scarey knowing f.m. wont get better....but we have to get past the grieving of being healthy(although i havent been since age 17)..
im not saying dont grieve,if thats where your at now,then you have to go through it...you will one day accept it and get used to how your life is.
im here anytime you need a listening ear,i mean it!!!!!
hugs
amy
Now I have to ask somebody just to get something plugged in under my desk if I'm having a bad day.
I used to be the one who crawled under the desk - and lifted the computer - hell one of my first jobs years ago was in a warehouse where I stocked the CAST IRON COOKWARE! I lifted cases of that stuff and put them up on racks over my head - and I was PROUD of it!
Yeah - it's hard - I used to like pushing myself physically and "pacing myself" feels unnatural.
We all go through the grieving - and each of us has to get through it in our own way. I've adjusted - and I've incorporated an active practice of gratitude to help with that - but there are days even after all these years that it still frustrates me - and I'm never going to NOT hate asking for help.
I want to old me back! The younger, the one that never had to take all these meds, the one that could move a room full of furniture all by myself...I want that person back, but I know she aint never going to return!
Just when I thought I was moving through the grieving process, I got smacked back to square one. My closest friends and my younger brothers all got married within a few years of one another. And then they all started families.
The realization that I'm 38 and it's not going to happen for me was/remains crushing. By 'crushing,' I mean soul and heart-crushing. Want to feel like damaged goods? Review all your losses and then combine them with seeing everyone else's life move forward.
I'm going to snap if one more person tells me that I'm loving, caring, empathetic, funny, blah-blah-blah and that there's someone out there for me. Hell, I couldn't get the boyfriend of 8+ years to commit to marriage when I was still working, had financial independance, and wasn't as sick all the time. Can you imagine the prize I'd bring home in my current state?
As you can see, I VERY clearly understand grief and grieving for our old lives, our plans, our goals, our aspirations. Fibromyalgia sucks - that's the most succinct way I can think to say it.
I've learned to let it go. There's just no easy solution. When I've spent myself, either psychologically or physically, or socially, intellectually, I just cave! Friends and family have to learn to accept it. There is nothing I can do about it. Just now I'm nursing my weak knee, the one I'm so proud of reforming after dislocating it a few years back. Well, it hurts again. And the old broken ankle. Even new boots don't still the pain.
Rest we must, accept we can, glad to re-visit the challenge right here.