Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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fibrosucks 03/17/2010

I am scheduled to consult with a rheumy/fibro specialist who is going to be conducting a study on fibro. As I have never been to a "fibro specialist" and I have no insurance right now I thought I would at least go for the consult since it is free. I'm interested in seeing if he thinks I have fibro. I doubt I can do the study with a 7 and 9 yo as I would not want to have to stop taking the meds I'm on as I would not be able to take care of the kids very well if I did not take any meds and I have no support really to help me. Does this sound like a good idea?

deleted_user 03/18/2010

I would go. Maybe you'll be lucky and you won't have to stop meds to be a part of study. It all depends on what type of study it is waether they want you to stop meds. Even if you don't get selected for the study they may do a really good evaluation first and you might get some helpful info.

Good Luck

deleted_user 03/20/2010

Yep Go. Good opportunity to get preferential treatmant!! Also feel free to say no if it doesn't suit you.

deleted_user 03/20/2010

it never hurts to try, if it is not for you, you can always say no thanks later. Sometimes the people who participate in these studies get paid, wouldn't that be nice.

Good luck.

PeaceN2You 03/20/2010

I agree that you won't know until you try. I did this once and didn't make the cut (ANA was 2 points over the set criteria for the study) I did get a very detailed physical and some good information. It was actually the study doc who said I needed to get tested for Vitamin D deficiency and it turned out I was very low and that did impact my pain level.

As an added bonus, the study doc, who was/is the director of one of the major research facilities, is now on the board of my non-profit. It doesn't hurt to put yourself out there - you will at least get the physical, and maybe other benefits you didn't expect.

deleted_user 03/20/2010

A doctor who knows what FM is? Do you know how rare that is?

deleted_user 03/20/2010

I agree might as well check it out and you can always say no

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