Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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ambling1 12/17/2008

I am new to this group and diagnosis. Could anyone recommend how to deal with/ treat a burning and tingling sensation deep in my muscles? My legs and back just hurt and ache and burn till I can't think past them. Sometimes I think I'm going to loose my mind with it! I just started Cymbalta and bentyl 1.5 weeks ago...does the Cymbalta help this? Any idea how long until I notice a difference?

(I posted this on 'discussions' yesterday..no replies, guess it was wrong board)

Thanks,
Amber

CarrieinSK 12/17/2008

Hi ambling,
I get regular massages from my hubby. He works the trigger points out. I also see a Reflexologist and my doc does Osteopathic exercises to help relieve the joint and muscle pain. I ordered a sample of 024 Fibromyalgia and others here use BioFreeze and Xlocaine cream. Stretching and light exercises may help.

Other things I do are take weekly B12 injections, MagForce (magnesium and malic acid), 5-HTP (don't take if on antidepressents), D-Ribose (muscle repair), Kyolic Garlic, AllibioticCF and a liquid calcium, magnesium and vitamin D3.

Hot baths with sea salts, epsom salts and essential oils, heating pad and/or blanket, magic bag, loose, diabetic socks and loose fitting pants, massage pads and chairs all help too.

CarrieinSK 12/17/2008

Oh yea, I forgot that I just started taking SAMe and a Voltaren RX (discontinued a while back but it worked at the time). I have Arthritis which causes as much pain (in joints).

barbieO 12/18/2008

There are so many treatments that are different for different folks with fibro. Some people with burning can get worse with trigger massage that is too vigorous, others do fine. I have found Cymbalta to be very helpful. Usually, it's a combination of meds and/or natural remedies. Keep looking and trying and informing yourself. See if you can get a prescription to see a physical therapist. Feel free to PM me if you would like. Good luck!

deleted_user 12/18/2008

Sorry to hear you are having so much pain.

I forget to look in the advice section often and I think others do to.

The burning tingling sounds like the nerve pain that many of us get. Drugs like Lyrica and Nuerontin are helpful for this type of pain.

Everyone is different though in what will work for them. I didn't do well on Cymbalta or Lyrica, which I took together for a year. They were both too expensive and weren't working so I switched out to just Neurontin. Once I got it up to the correct dose it really began helping me. It doesn't get rid of the pain for me, but it takes that awful nerve pain down to a low rumble.

I hope you find what works for you.

deleted_user 12/18/2008

what are you taking the bentyl for did the doctor tell you what this is suppose to help. I still working on finding the right treatment for me but I have found that flexeril does help my muscles to relax which is what is suppose to do.

deleted_user 12/18/2008

also Cymbalta could take up to a month before you'll know if it is working. I tried it but it didn't work for me but others have found it helpful. Everyone is different. It might be good to keep a pain log so you can talk with your doctor if the meds aren't working.

For non med help alot of people find hot baths with epsom salt and stretching exercises help them.

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