Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
http://www.drugs.com/sfx/cymbalta-side-effects.html
Cymbalta: http://www.drugs.com/answers/wht-are-the-withdrawlal-signs-for-cymbalta-319607.html
Lyrica withdrawal side effects info: http://www.lyricamedication.info/withdrawalsymptoms.html
Savella
http://www.drugs.com/pro/savella.html
Hope you find the drug that helps you.
I heard in a psychiatry grand rounds podcast (I listen/read anything I can get my hands on since my diagnosis), that a small dosage of aspirin can make non responders of Cymbalta into responders. BUT, whereas I have no qualms recommending a prescription medicine because I know that no one can get it without a doctor, this is a different story because aspirin is over the counter. PLEASE, if you are going to consider this, ask your doctor!
My primary problem has been myofascial pain syndrome and through that I've read a lot of information about fibro as both conditions are sort of like conjoined twins! Or different sides of the same coin. Tracking down my muscle knots makes a major difference in the fibro, I understand all that side. What I'm trying to get a handle on is the physiology of fibromyalgia. It's weird, causes weird things to happen and is so unique to each person. What's happening? Where does it start in the body and how does it manifest into all the different symptoms? why? why? why?!
One thing I'm completely sure of is that fibromyalgia is treated differently not just by different specialists and complementary therapists (I suppose like each sees or deals with one side of 'the ice-berg') but more fundementally by different countrys. So the treatment regime you guys generally have in the US is different to the one I have here in the UK; these sort of differences are interesting in terms of medication regimes. Some countries seem to have lots of pills for the patient whilst others hardly any.
In terms of dietary regimes for managing symptoms I go for a high level of starchy carbs and making sure to eat regularly (at least every 2 hours). I read a book about combating fatigue that recommended as balanced as possible life style to reduce symptoms and this high-carb diet for increasing energy and, for me, it works so well it I finally realised quite how little energy I had (if that makes sense)! 18 months later my energy stores are so much better and yet I get utterly exhausted, totally shattered, on a regular basis for various reasons. Back to 'symptom control' rather than 'cure'.
This is one of the things that is baffling...why do so many of us react in so many different ways as part of the same condition? (that one's actually quite easy to answer in broad terms, less so with finer details).
Right now, what I'd love to know, is "does anyone else feel like your brain overheats when you get overstimulated or do too much or have a reaction of some other kind?"!!!
The more I track my symptoms the more I notice this weird feeling of my brain (rather than my mind) over-heating and also the nerves firing too quickly to cope with sort of like my brain is whizzing along too fast to cope with. It might be more of a 'trauma response' than just a fibro response; who knows!
Anyway, I just wanted to say it's been useful reading all your different experiences with fibromyalgia - the differences are as interesting as the same experiences.
And all those fibro-meds? I've got a suspecion at least one isn't licenced for use in the UK so it's not even an option.