Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I am so frustarted right now.
I am limping horrible and can barely walk. The cane doesn't really help and I am wodnering if crutches would be helpful at all to take the weight off.
It was so bad, that I went to the ER last night. They did XRays and the doc taht came in told me I had plantar fascitis. I've had that before. This feels different and is manifesting in a diffenent place. It isn't on the true bottom of the foot where the plantar fascia runs. It is up on the arch over the bone. There is swelling and slight bruising that has remained unchanged for over two weeks.
First off it was a half mile hike from parking to the ER itself. They asked if I wanted a wheelchair, and I told them it depended on how far they wanted me to walk. I was goo from the counter to the triage room and the waiting area. My little cane and I limped all over that hospital as they sent my myself to radiology where I got to listen to the lady at the desk tell me that she had an emergency at home but couldn't leave work. As i ehard on the phone pater, it was a plumbing issue.
When the dr gave me her verdict of PF, I started crying. I explained that I had had that before and this was different. I have sprained my ankle multiple times and this was different from that as well. She set up a referral to podiatry and told me that they could probably see me in a week or so.
I told her that everytime something like this had come up (knee, hips,. elbows, shoulder, etc) that drs. prescribe soem sort of medicine, try some sort of therapy and then a couple of months later they tell me
that it will be chronic and I have to live it.
She talked about shoes and inserts and I pointed out that only one tennis shoe company makes my size (new balance) and I HAVE the inserts to provide arch support. It make shoes like $200 a pair. The only store that carried dress shoes in my size closed two years ago and even though I spend most of the da on my feet, the world of education feels that teachers should look like bankers.
Then (i imagine because I was crying from the frustration of it all) she started talking about the fact that I was likely a candidate for medicines that would help with my mood because helping my mood would help the pain. Hmmmm...
(insert expletive here) Perhaps actually addressing the pain would help the pain which would help my (more expletives) mood.
She mentioned that they might do an injection in my foot, but I didn't react well to the one cortizone shot I have ever had - my knee swelled up so horribly that I couldn't walk at all.
So I left there with a 30 day supply of Celebrex, a referral to podiatry, and a note that tells work I can wear sneakers for a week.
Then I went home and went to bed and haven't come out yet. I am very sad about this. I wept all the way home because I know how it is going to end - soemthing new that will hurt forever only now I can't really walk anymore.
If I dont' walk and do exercise, the fibro gets cripplingly worse, so I am really lost as to what to do and I cry some more when I think about it.
I can't even trick-or-treat with my boy.
I am limping horrible and can barely walk. The cane doesn't really help and I am wodnering if crutches would be helpful at all to take the weight off.
It was so bad, that I went to the ER last night. They did XRays and the doc taht came in told me I had plantar fascitis. I've had that before. This feels different and is manifesting in a diffenent place. It isn't on the true bottom of the foot where the plantar fascia runs. It is up on the arch over the bone. There is swelling and slight bruising that has remained unchanged for over two weeks.
First off it was a half mile hike from parking to the ER itself. They asked if I wanted a wheelchair, and I told them it depended on how far they wanted me to walk. I was goo from the counter to the triage room and the waiting area. My little cane and I limped all over that hospital as they sent my myself to radiology where I got to listen to the lady at the desk tell me that she had an emergency at home but couldn't leave work. As i ehard on the phone pater, it was a plumbing issue.
When the dr gave me her verdict of PF, I started crying. I explained that I had had that before and this was different. I have sprained my ankle multiple times and this was different from that as well. She set up a referral to podiatry and told me that they could probably see me in a week or so.
I told her that everytime something like this had come up (knee, hips,. elbows, shoulder, etc) that drs. prescribe soem sort of medicine, try some sort of therapy and then a couple of months later they tell me
that it will be chronic and I have to live it.
She talked about shoes and inserts and I pointed out that only one tennis shoe company makes my size (new balance) and I HAVE the inserts to provide arch support. It make shoes like $200 a pair. The only store that carried dress shoes in my size closed two years ago and even though I spend most of the da on my feet, the world of education feels that teachers should look like bankers.
Then (i imagine because I was crying from the frustration of it all) she started talking about the fact that I was likely a candidate for medicines that would help with my mood because helping my mood would help the pain. Hmmmm...
(insert expletive here) Perhaps actually addressing the pain would help the pain which would help my (more expletives) mood.
She mentioned that they might do an injection in my foot, but I didn't react well to the one cortizone shot I have ever had - my knee swelled up so horribly that I couldn't walk at all.
So I left there with a 30 day supply of Celebrex, a referral to podiatry, and a note that tells work I can wear sneakers for a week.
Then I went home and went to bed and haven't come out yet. I am very sad about this. I wept all the way home because I know how it is going to end - soemthing new that will hurt forever only now I can't really walk anymore.
If I dont' walk and do exercise, the fibro gets cripplingly worse, so I am really lost as to what to do and I cry some more when I think about it.
I can't even trick-or-treat with my boy.
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
PF release on both feet. Now the left foot has major arthritis in the lisfranc joints and the cartilage is all out and sits on the top of my foot. They want to go in and fuse the joints....at this time I am not sure as I have heard the arthritis just comes back.
The price of shoes I understand it seems to be a major investment and I love shoes and purses. I look hard and long to get stylish shoes. Now it is mostly Naots and tennis shoes that accommodate orthotics. Pain meds help some but not much.
Lalab
I guess my Catholic school upbringing made me into the perfectionist I am today when it comes to written and spoken communication. The thing that gets to me the most, started happening when my daughter was in grade school. Kids would say something happened "on" accident instead of "by" accident. Drives me crazy and now it seems like the entire population has added this incorrect phrase to their speech patterns. Just one of many things that drive educated people crazy, huh?
Regarding your foot: There was something that was first identified in the civil war that sounds like something you and I have in common. Two years ago, I started having pain across the top of one foot that wouldn't go away. Earlier that year I had become very ill due to a urinary tract infection from e-coli that went septic and spread throughout my body. I was near death and peeing dark brown in the hospital, which means, I have read, that your muscles are disintigrating. I was left with a bad case of Raynaud's Disease and had to take a special pill to open what capillaries I had left in my hands and feet. They had started to die since they were farthest from my heart. I now cannot feel the bottom half of my toes.
I had recovered from the e-coli attack and was doing pretty well, when this pain across the top of my left foot, from the base of my toes to my ankle, started to annoy me. I thought I had a hairline fracture so I had it ex-rayed. It wasn't broken, but continued to hurt. This Civil War thing is called by three initials like RLS or something like that. Can't remember the actual initials. It is from trauma. And yes, you were right the first time, there is nothing they can do about it. I did get pain patches, however and that did the trick. May I suggest you try the same thing? Hope this is helpful to you.
Mizroze