I take Topamax for migraine prevention, not for my FM....can't say that it's helped the FM any, but definitely has prevented the migraines :)

For fatigue, I've found D-ribose to be of great help to me....its a natural substance our body makes, but we don't always have enough....I get mine at a local health food store....

Check out a sub-group we started, The Fibro Puzzle....lots of us have posted the stories of how our fibro started, what helps us, etc....go to the top of the page and click on Groups, and you should see it....

Hope some of this helps....welcome to the FM group, and jump right in!

HUGS from down south :)

Sorry you have been diagnosed with fibro. I was given Topamax for my migraines,it didn't really help them though.I have never heard it given for fibro. I'm one of the people on her that has had it over 20yrs, I take vicodin 4 times a day,some days it helps,then somedays like today it doesn't even touch the pain. I will keep you in my prayers that you find a good Dr and he will find the right treatment for you,because eveeryone is different that has fibro,just watch the board and you'll find out,its such a (I'll do whatever I want to do disease,and when ever I want to do it ). Gentle Hugs and Prayers :)

I have had it for miagraines but it did not seem to help. I hope it works for u.

i have FM and chonic migraine headaches, i take topamax, helps a teeny tiney with the FM and cuts my migrains in half. I sure hope it helps your face pain like i i've heard it has helped others! i've heard good things!

welcome to the group. how are you taking this new dx?

take care

I started taking Topamirate (Topamax) at night about 3 weeks ago. But it was more for the neurological/central nervous system aspect of Fibromyalgia as a result of an auto accident. I take it with Nortriptylene and Flexeril (muscle relaxant) at night. And, I take Ibuprofen 600 mg 2-3X during the day.

I had to have surgery after the auto accident and that seemed to trigger the Fibromyalgia. Before I was diagnosed with Fibromyalgia I was showing signs of Migraine....the aura in the eyes with delayed headaches.

I take topamax for the fibro and it's really helped. At least in combination with the neurotin and flexoril. But I had to get to a fairly high dose before it really helped. How much topamax are you on? You may just need a higher dose. Or it may not be the right medication for you. You won't know until you try.

Hello first of all i am very sorry that you have been pleaded with this condition. I am have been on topamax and personally the medication worked for me but only lasted twenty minutes. In addition i was having severe headaches. I have not found a pain meds or lifestyle that can combat the pain. I am very sorry and hope that you find your med cocktail.

First and foremost, thanks for everyones responses and concerns, they are appreciated so much!!! I started off with Topamax 25mg 2x's a day and within 2 days he up'd me to 50mg's 2x's a day but I still feel like I am in extreme amounts of pain...it has helped a lot with the TN. The Topamax has helped me lose weight too which has been a blessing. At first I was on gabapentin(Neurontin) for the TN and I gained over 40lbs in 2 months from it (total nightmare) and I have since lost 9 lbs in less than 2 weeks (yay) but I still feel horrible everyday in my spine, neck, shoulders, and back of my legs and knees. I am also on 10 mg of baclofen 2x's a day which is a muscle relaxer/anti-spasmatic and naproxen 375mg and I get wicked headaches so my Dr prescribed me Midrin and sometimes it gets rid of the migraines sometimes not but the Topamax doesnt seem to help the headaches at all which is strange because I know it is a migraine medicine. But then again...what does make sense these days? lol thanks again everyone for being so welcoming... and caring!!!

When I was in my 20's, I used to have excrutiating headaches. I was never diagnosed as having Migraine probably because when I had the headaches I was so bad I could never go to see a doctor. I had nasal allergies really bad. Eventually, I had my 'nasal turbinates' (tissues swelling) removed. After that, the severe headaches stopped completely. I really didn't have headaches again until I got Fibromyalgia. You might also consider asking an Ears-Nose-Throat doctor to check to make sure you don't have blockage that causes swelling and pain

I've been prescribed the various pain meds for Fibro and was shocked at the quantity. I quickly learned to only take what I felt comfortable taking. If I took what they recommended, I'd probably be asleep on the floor and still be there for another 2 weeks. :)

Thanks for the suggestion! I have also practically lived at the ENT my whole life for tonsil problems so I'm sure it's a good idea to go back there too because even with Topamax and this other medicine, Midrin, I still have bangin headaches and I also have Trigeminal Neuralgia which includes electric shocking stikes of pain to my temples, enough to make you almost drop to the floor...I compare it to being tasered in the head... not fun to say the least....(sigh) thank you for taking the time to write back!