I think you came to the right decision blue, its not something to rush into when you arent sure!
I decided not to have kids before my fibro dx, there is NO WAY I could be a mom now, I can barely take care of myself, my husband is always working and my medical bills keep us broke. No room for baby here!

Hello! I have 2 boys, ages 1 and 4. They are the loves and sunshine of my life. My husband is exceptionally supportive with chores and bathing the boys and bedtime routines and I also enlisted women from my church and family to make meals and fold laundry and keep my house up for 2 months while I recovered from having my babies. I've lived with fm since I was 19 and waited to begin any meds that I'd need to stop for pregnancy or breastfeeding, so I don't know what it would be like to stop meds. In pregnancy, I observed my fm pain actually lessened...possibly because of this hormone called elastin that makes joints more elastic to stretch and make room for baby. I did exchange my usual flareups for different aches and discomforts, but I could handle those knowing they'd end after a few months. If you do decide to have a baby, you can expect a difficult time post partum, both with lack of sleep and physical hormonal changes causing flareups. If you have the support in place, then it is possible to get through any pain...just take lots of photos so you will be able to look back and see how tiny and sweet your baby is, because you may be too exhausted to enjoy. Also, I experienced a ridiculous amount of breastfeeding problems and excruciating pain, which I really think was because my fm amplified my pain, but I was dedicated to nursing knowing it's the best for infants. It is good to consider the possibilities and your support team, but don't let your illness limit you from doing something your heart longs for. I still hear well meaning people telling me what I can't or shouldn't do, but do they really know? It is truly difficult to carry a newborn (slings and backpacks would be out for you) and your shoulders ache and you long for a night of sleep, but motherhood is such an amazing experience. I wouldn't trade it for less pain or more sleep. I, too, struggle with guilt at my boys limited lifetsyle due to us only going out to the grocery store or church, but they grow and thrive in any environment. Also, an incredible gift is given to mothers from their babies. So, months and even years after carrying a baby, a woman's body has cells that repair and renew (like stem cells) and may even heal somehing in your body that you never imagined could be better. Also, being a mom and hearing your child cry for you...you push through pain and fatigue to be there for them, they make me stronger than I physically am. And the affection and cuddles and touch is very soothing and calming and healing. I would be an anxious, lonely person struggling to get through each day with my pain if I didn't have little people depending on my to care for them and be more than I should be able to be. Thank God for my babies. I hope this helps you decide. Even if you shower your love and affection on whatever children enter your life for any period of time, you will be blessed in return. May you find peace in your decision and strength for today. :)

I actually had fibromyalgia with my last two children and experienced a remission period during whole time I was pregnant and about 6 months after the baby I still had no symptoms of fibromyalgia. I know everyone's different but they are the reason I keep movin even when it hurts so bad. Now when the fibro came back it slammed me with no warning but fortunately my husband understands and helps me when my flare ups occur. I wouldn't change having children bc they bring me and my husband so much joy! I hope this helped!

Why don't you try a trial run?
By that I mean see how long you can lug around a 20# bag of potatoes? When it comes to older babies, 20#'s isn't all that much.
How many times can you get up during the night and stay up for anywhere from 20 minutes to an hour and still be fully functioning during the day?
Time goes by very quickly with children and before you know it you are dashing to ballet lessons, baseball practice, school assemblies - well that list goes on ad nauseum.
I would strongly suggest a trial run.

When my sleep is interrupted I don't feel too good, I will be very sleepy during the day. And if my sleep is interrupted night after night, my pain gets worse, and I start sleeping during the day. I can't drive to places because i"m too sleepy.

For instance.... when my mom broke her leg back in 2010 and i had to care for her I did not get good rest, I had to push and pull her in her wheel chair, I had to make liquid meals for her every day and bring her water to her bed side all day, Had to go to doc appts w/ her, I ended up with back to back severe flares for months. It took like a year before I started getting back to normal pain levels or normal sleep patterns.
I was in such bad shape that started looking for homes for my cats because I couldn't get up to feed them or scoop their litter. Thankfully, by then nurses began to come out and help with the care my mom required. And my youngest bro came out for a couple weeks to pitch in, too. So I was able to take some time to do some self care.

But because of what happened 3 yrs ago it scares me to have kids.

Bluesun,
There's a great deal of wisdom in these replies (except for carrying a 20 pound sack of potatoes! START with a 5 pound bag of potatoes and your strength will increase over a year to handle that 20 pound one year old!).

Each pregnancy is different in some women. My third, I cried all the time. My fourth and last, I felt better than I had my entire life! The most important things are what you and your husband truly want. Hope the answers will come to you both. Best wishes.