Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Was that too much information? LOL
There are times when I'll have a VERY bad day of pain and feeling out of it where I can't concentrate and am extremely irritable and those are times I'd call a flare. Maybe that's not what others feel though, I don't know.
Hope today is a good day for you! xo
Cymbalta has helped about 90% of my pain, but there is NEVER a day I do not hurt at least minorly SOMEWHERE.
What the Hell?
My mom had rheumatoid arthritis before I was born and was always in pain, so I grew up thinking that was normal. I think I've had fibro since I was a kid but just never knew what was wrong. I don't have RA, "just" osteoarthritis, so there's apin from that every day. It's hard to tell what's fibro and what's OA. You're not alone!
Yes, I hurt all the time. I have hurt for as long as I can remember. I can take a lot of pain. Since being on my meds my pain level has decreased and my energy level has decreased. I started seeking treatment when my pain and fatigue were so bad that I was unable to get out of bed, I couldn't sleep at all(maybe ten hours a week), and even if I slept I felt the pain in my sleep, I couldn't keep my eyes open, and I could hardly remember my name, couldn't complete a sentence. Now, with lots of meds I sleep throughout the night and am able to function. I still hurt all the time, and by the end of my work day I hurt a lot and am very tired. On my days off, I pretty much rest and try to conserve and build up energy, so I can work since I don't have a choice. Late evening on Feb. 13th I started feeling really bad, the pain was getting out of control and I could hardly get out of bed. My whole body was on fire, raging with uncontrolable spasms, sharp pain all the way to the bone, my joints were hurting and stiff. From my scalp, my hair all the way to the tips of my toes, I was hurting. My feet and hands were constantly getting numb and I had electric shocks going through my body. I was feeling very tired, foggy, I couldn't sleep, yet I couldn't stay completely awake. I tried going to work on Wed., but I was almost unable to function and had it not been for my co-worker's help I would have had to leave work. The next two days I called in sick, then, I was off for one day, worked one day and off two more days. All those days I was in horrible pain, and barely functioning. I went to my doctor and he gave me Vicodin which barely took the edge of the pain. I can't really take too much real pain meds, I can't take them at work, either. I only take them as the last ressort. The first day I felt any real relief was Thur. morning which was day eleven since my flare. I felt a little relief for a day and a half and since last night my body's back in a rage. C
Again, it hurts to have clothes on, everything hurts.
So, just to answer your question, I don't think you're alone being in pain all the time, I believe most of the people on this site are in pain all the time. The way I explain it to my doctor is that I'm in pain all the time, it is just the intensity that varries and on the good days it hurts in some places, not everywhere at once. During the flare it hurts everywhere, and I'm pretty much unable to function. Before I got treatment, and many days since, I have been at that level.
I hope I didn't write too much, I just wanted to explain it well, so you could see the whole picture. I didn't really go into detail, trust me if I explained every single kind of pain I get and how it affects me, I could write a book.
I hope you have a good weekend.
No, you are not crazy. I have pain every day.
I was first diagnosed with osteoarthritis at age 32. Since then it has gotten worse. When I hit menopause things really got bad and I have also been diagnosed with Fibromyalgia and periarticular osteopenia.
I have arthritis in ankles, toes, feet, knees, back, hands, wrists, fingers. I also have pain in elbows, neck, and recently hips. I wear splints on thumbs due to CMC arthritis.
I take Tramadol, Savella, Trazodone, Gabapentin, and OTC Aleve. I no longer take Diclofenac due to side effects. I'm concerned that things are just going to keep getting worse.
I don't know what a flare is because I do hurt all the time. The pain meds do help, as well as the Savella. A good night's sleep does help me cope better. I guess a flare must be when I hurt more than usual.
I am rather new to Fibro, was just diagnosed in November. I was concerned about having rheumatoid arthritis due to the symmetrical pain and the severity. The Savella does seem to help me, especially with the fatigue.
I would love to be back working. I'd take any kind of job. But I don't think I could make it through a work day. I don't trust my mind, and I usually have to take a nap during the day. And sometimes the pain is unbearable even with meds--that must be a flare.
I hope you feel better, and am sending soft hugs to you. Kathy
wishing for no more flares, right everyone?!