Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I typically prefer nurse practitioners over doctors. They usually listen better and show more compassion. Makes sense since the foundation of their medical training is totally different (or used to be anyway) - it's much more patient and compassion based versus doctors who're trained to distance themselves from the patient.
A friend whose daughter is in medical school (I think 2nd year) said they've already told them that estrogen is bad. Since most women wouldn't need estrogen if they didn't remove organs, I asked if they said anything about female organ removal. She said they didn't. The studies don't show that estrogen is bad anyway so not sure why they're teaching that. But they keep doing hysterectomies too and they've been shown to be damaging for a long time.
Are you on hormones now? Have they helped your symptoms? No need to apologize for venting! You can vent all you want here.
For some there may be a correlation, for those of us whom seem predisposed to developing fibro an awful lot of different major life stresses could flip the switch. Hormonal issues way be some of them. But hey, guys get fibro to, so do some teenagers, even children.
Am worried when I read 'change of life' hypotheses, because medical establishment for so long liked to discount women's symptoms using that sort of rationale... i.e. origin of word hysteria comes from a medical association of mental illness w/ being female. Women are less fit, women are less intelligent, women are less stable... you get the picture.
Life is a rocky road, lots of things can create conditions right for illness to occur.
Perhaps it's just another one of those possible "triggers" they talk about. A physical trauma that sets off the disease?
I know I've had two major physical events in my life - one pregnancy, and one serious year long illness. Each made my FM 10 times worse. So the trigger/trauma theory holds for me even after the syndrome manifests.
Surgeon discovered I had fibro-cystic ovarian disease, and so when I got those little suckers out it was like a successful exorcism. Was able to go onto un-opposed estrogen therapy at fairly high dose and hope I remain on it forever.
Getting a hysterectomy made me feel better than I had since I'd gone through puberty! (Fibro was there before surgery and remains still, of course.)
While I have never seen a link before, this does make me curious about a link between hormones and fibro