I am not going to be helpful I had a hysto in my twenties and now in my forties I don't even notice my cycles however with my fibro I don't notice any difference during the month but like I said cycles don't even enter my mind any more. Sorry but I did want to welcome you to the group and encourage you to stay if you are diagnosed so that you can feel supported. Also get educated about fibro. I good book is fibromyalgia for dummies....I know funny right. I read it and it helped me understand my symptoms more and my Dad read it and it helped him understand what I am going through. Take care of yourself and be kind to yourself.

Hello

Please go to a dr, neurologist, rheumy and get all the bloodwork and testing done. When they do all the test and find nothing and you have widespread pain and tenderpoints thats when you get a dx for fibro.

Hopefully your pain could be just from low vit D or other things that mimic fibro. Just never dx yourself, because you could have something that can be treated and cured. That would be a blessing.

thank you for your responses!
i understand about not dx myself i have appts for hormone level tests and food allergies coming up. ill make one with a neurologist as well. i am just dreading because after fighting for a dx with endo-being in pain and having no one believe me i really dont want to see another doctor who believes fibro is all in my head. from what i can tell by my readings fibro is often disregarded, much like endo pain

i wanted to add that i do have the some of the trigger points as well. i read that in order for a dx there needs to be 11 of the 18 trigger points, which i dont have quite 11 of them but nonetheless...

wow!b thank you-lots of good info there!

I have pcod, fibro, ms, von wilderbrands type a and hashimotos and pernicious anemia. I've found if you have one auto immune disorder you will normally have more. it took four years of stubbornness and then over a year of testing to finally get the fibro and ms dx.
I'm not quite 40 yet but I am starting menopause.
the doctors will run a gob of blood work to rule stuff out, they will most likely do a nerve conduction study ( which is not high on my fun list of things to do) and I'd suggest you ask for a mri of the brain and spine with and without contrast.
my doctors were able to.tell me what it isn't, but it wasn't until agreements ago they were able to tell me what it is.
I know how hard it can be to find a doctor that will listen. women still have the stigma of being hysterical with doctors. my Neuro is a good one. he told me it is all in my head but I'm not crazy. My brain is messed up and so is the wiring from my brain.not only does it send signals that aren't there it reads signals that aren't there, but that doesn't mean the pain isn't real because it is.
you are not crazy. get educated and understand that you are your best advocate. it also helps to have a friend or family member go to the appointments with you who is willing to listen but also speak up for you. if the doctor doesn't listen keep talking until he does or find a new doctor.
and yes, my pain is worse when I have my cycle. it also has triggered a ms flare before.

You obviously know you need to see your doctor, so I'm just going to answer your question.

The first symptom I ever had was feeling like I had the flu every month when I had my period. At the time my OB/GYN said she's never heard of anything like that (mid 80s) - ironically this year she was diagnosed herself.

From a couple of days before my period to a couple of days after, every month, I had what I now know are "classic" muscle aches that I could only describe at the time as feeling like I did when I had the flu. I didn't develop more symptoms for nearly 10 years but looking back, that was where it started.

I know what you mean about cycles continuing - I am post-menopausal and I still have mood swings, and even a bit of an increase in my fibro symptoms.

It's not like that for everybody, but it was/is for me.

I had sever endrometiriosis and started w a partial hystorectomy then a few years later a total. I have recently been diagnoised w fibro. Take care of yourself.