I went to a rheumy who specialized in fibro, then I went back to reg dr.

Maybe go to fibro.org and see their listing or one of the main fibro org sites.

I found mine through Google. It took a lot of tries and a lot of dead ends, but finally I have a doctor I really like who seems to really know her stuff. Try searching "fibromyalgia", "rheumatologist", and "neurologist" with your city and see what you find. Then after you look through their websites make some phone calls to the ones you like. Sometimes the local hospital can make recommendations as well.

Never had the best luck with my rheumy, he would just reconfirm diagnosis via lots of testing, then tell me to come back if I experienced change, tried me on a couple drugs I had bad reactions to and stopped there.

Personally it is having a doc who really cares about your quality of life, and supports your need to maximize it. I stick w/ my same pcp doc, because he fits the bill. I have been seeing him for so long he understands my entire medical history and can make suggestions that are appropriate for me overall.

I would rather have one consistent partner in my health care than to get evaluated by a team of unknown experts.

That said, we all need good quality medical support, and I wish you great good luck in finding a doc who does right by you.

Hugs

I found a fibro specialist from someone on this website. I flew across the country to see him. He was great.

I also went to one closer to my home several years ago and he was also excellent. Found him through FM partnership dot org.

It really does help to see a specialist. Hope you find one.

Be careful when searching for a Fibro Specialist. There are a lot of scammers out there who want to take money from desperate people.

I live in a decent size city (Mempis), and I have been unable to find a doctor whom I feel really appreciates or cares about my FM. I've stuck it out with the same rheumy for 6 years now just because it is so hard to start for scratch. I did try a few years ago, choose a female rheumy in the area and waited almost 3 months for the appointment. Took my huge stack of medical records with me, along with my husband for moral support. (I knew what was going to happen, and it did). She was non symanthtic, harse and treated me as though I was a 'drug seeker', she typed into her computer the entire consultation and didn't make eye contac once! What a huge waste of time and expectation that was! So I've stuck with the original one, though I know it's just going through the motions, labs every three months to get refills on meds. He is old and should be retired( along with the whole staff), at one time I'm sure he was a great Dr. But I don't think anyone there has learned anything new in the Fibro field in the past 20 years. I probably know more than them. I would love to find a Fibro speacilist close by, one that really understood. They may not be able to do any more to help me, but I just wish that I felt comfortable in knowing someone really understood.

I agree with skinnybinny. Be very careful. The two doctors here locally who call themselves "fibromyalgia specialists" - well let's just say I wouldn't refer anyone to them.

Since one of them threatened to sue me a couple of years ago for something one of my support group members posted on our website (which is now private for that very reason) I'm not going to say more LOL

YEs I agree ... be careful of those that call themselves "specialists" in Fibromyalgia.

Its a pretty broad term- it would be easier if you knew what kind of specialist you are looking for... ie Rheumy? OR "Alternative medicine specialist?" It might depend on what symptoms you are struggling with most...

You can go to co-cure.org and do a search on the good doctors list. They have various fibro specialist listed on their site. I would write out a list of questions and interview them over the phone, as well as interview the doctor in person to make sure that he/she agrees with your philosophy. I know that the Rehabilitation institute of Chicago has a full day and half day program for those who suffer from fibro or other chronic pain conditions. You can also do a search for fibromyalgia doctors within a particular area.

My doctor specializes in the treatment of fibro and has helped me tremendously. I also incorporate acupuncture, massage therapy, chiropractic care, and hydrotherapy into my weekly routine. I am on a multitude of nutritionals and tramadol as needed. Hope you find a great Doc soon.

I'd look for a sleep specialist too. Mine has helped me the most as most of us have severe insomnia. After a few sleep tests, he dx. me and prescribes Xyrem, (sodium oxybate) and I get restorative and deep sleep. Also found out that I had sleep apnea, so I use a mask.

In the last six years, he has been the most helpful of all my drs. I see him once a month. He is a psychiatrist with a sleep specialty. Think about this, I wish someone had told me this 30 years ago.