Yup! All. The. Time! It sucks.

I try to now do my best before I host an event or plan for an event. I pace myself 2 weeks out in advance. (especially if I am hosting).

Then the day of, I try hard not to cram in too many other things. This allows me to focus on what fibro tosses at me and the event at hand.

It's never what it used to be. I remember being able to just whiz through and get it all done in one day with enough of me to enjoy the event. But now? I don't go to events where even the parking lot is too full...that means walking upon walking. I don't do a lot of things actually.

It sucks.

Wonderbaby , thank you so much for your reply !! I so appreciate your input and how you handle "life". I feel understood and in good company - only those of us who have this condition truly understand.

Hoping this New Year brings you less pain, more energy, less fatigue and more joy !!


p.s. and yes it sucks !

I get anxious over any and everything. I literally feel overwhelmed unless I'm sitting still with no demands on me. I believe it's because our bodies stay in a flight or fight response from the physical and mental demands of being in constant pain. I"m sorry you experience it too. I would honestly be surprised if you didn't. Wishing the best year possible under our conditions. Hugs

Yes, everyone expects that I could participate in Christmas parties, 100 miles away, this year I just went on a retreat in my room for the two weeks leading up to Christmas, worked out great, didn’t do anything... I did explain to one person about the “spoon theory”, I think he understood. The anxiaty is real, what if you have a flare in the middleof a event 100 miles from home?
Hope everyone has a Happy New Year!

Twinmomab , thank you for your reply. I am sorry you understand how I feel but comforted that the "fibro" life leads us to a life that was different than it used to be and different than other people. May the New Year bring you less pain, more rest and many blessings ! Warm hugs !!

Jonsparky, thank you for reminding me of the "spoons" theory !!! Yes, traveling , being away from home and having a bad flare would create so much anxiety and make me feel trapped !!! Not good. !!! I am hoping the New Year will bring you some relief and good things. Happy New Year !!

I have just entertained my 2 sons and a girlfriend for 2 weeks and yes, I did stress out, and had more pain, before and after.

I had food pre-prepared, and everybody helped.

I normally take a "day off" a week, and only do what I want to do.

Today is my "day off" and I enjoy the encouragement and help from people who understand.

Definitely!

If someone is expecting me somewhere at a specific time, even worse if I have to look nice,... it will put so much pressure on me and send my anxiety up. We just never know from one hour to the next how we will feel. I can never formally agree to anything, and only say, "I'll try" and hope they'll understand. Some people do and some don't. Some people understand if I cancel and will see me the next time but others never bother inviting me out again. I think some of the anxiety is from that too... that if I don't live up to their expectations then I'll never be invited again. Or perhaps they'll never talk to me again. It's hard to keep a social life with this illness. It's even harder to keep a few good, caring friends.