Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I recently posted a link to a picture Ive come across on Pinterest showing what a Fibromyalgia patient would look like if their condition was visible. Its kind of shocking but I thought it might help some of us to see our pain acknowledged.
My Illness Is Real: http://www.pinterest.com/pin/444237950716564571/
I thought Id also include some other Fibro-related images that Ive come across on Pinterest; the second set of links are more cheerful. Id love to hear what anyone thinks about them whether you can relate or even if you disagree with any and Id also love to see any you may have found if youd like to leave me a link.
What We Go Through
No. 1 Cause of Death for Fibro Patients: http://www.pinterest.com/pin/444237950716789501/
Fibromyalgia by ~shadowleoparddreams on deviantART http://www.pinterest.com/pin/444237950713389639/
Fibromyalgia by *astraldreamer on deviantART http://www.pinterest.com/pin/444237950713389637/
Pain Changed Me: http://www.pinterest.com/pin/444237950713738291/
When You Ask a Fibro Person How Are You? http://www.pinterest.com/pin/444237950716593768/
Having an Invisible Disability: http://www.pinterest.com/pin/444237950715130513/
Fibromyalgia Problems: http://www.pinterest.com/pin/444237950716789494/
Please Dont Judge Me: http://www.pinterest.com/pin/444237950715130486/
I Have An Invisible Illness: http://www.pinterest.com/pin/444237950716388850/
Fatigue: http://www.pinterest.com/pin/444237950715130479/
Princess and the Pea Syndrome: http://www.pinterest.com/pin/444237950715130565/
Humour
Fibromyalgia Humour Badges: http://www.pinterest.com/pin/444237950716405741/
Getting Out of Bed: http://www.pinterest.com/pin/444237950716405730/
Taking A Nap: http://www.pinterest.com/pin/444237950716405736/
Night and Day: http://www.pinterest.com/pin/444237950716102209/
Awake At Night: http://www.pinterest.com/pin/444237950716388799/
This Is Your Brain: http://www.pinterest.com/pin/444237950716796653/
I Survived Another Day: http://www.pinterest.com/pin/444237950716405752/
I Gave You a Diagnosis http://www.pinterest.com/pin/444237950716405757/
Exhaustipated: http://www.pinterest.com/pin/444237950715129841/
Tired: http://www.pinterest.com/pin/444237950715425325/
Woken For No Reason: http://www.pinterest.com/pin/444237950715677067/
Fibromyalgia Advice: http://www.pinterest.com/pin/444237950715129848/
Yes I Do Have a Disability: http://www.pinterest.com/pin/444237950713738301/
Fibro Flare: http://www.pinterest.com/pin/444237950715129843/
Im So Happy I Got This Illness http://www.pinterest.com/pin/444237950716388796/
If I Woke Up and Nothing Hurt: http://www.pinterest.com/pin/444237950715130124/
If I Looked As Bad As I Feel: http://www.pinterest.com/pin/444237950715130500/
This is one of my favourites because often when I wake up I think I feel like the Tin Man.
Exercise To Fibro Patients: http://www.pinterest.com/pin/444237950715130145/
Characters Who Inspire Me ... maybe you can relate too?
1) Lisbeth Salander from The Girl with the Dragon Tattoo, a strong woman who has had to overcome physical challenges and pain: http://www.pinterest.com/pin/444237950713698842/
2) Arya Stark from Game of Thrones, who wanted to learn to swordfight like her brothers. Her instructor taught her that there is only one god, the god of death. Whenever the god of death comes for her she must always tell him, Not today! This is the kind of attitude I need to have about my health issues that they will never defeat me.
http://www.pinterest.com/pin/444237950715799615/
http://www.pinterest.com/pin/444237950713965307/
http://www.pinterest.com/pin/444660163178614679/
3) Beatrix Kiddo from Kill Bill. Though her feats were unrealistic, she definitely experienced pain and atrophy. In the scene pictured here, she has woken from a coma after 4 years and is unable to use her legs. http://www.pinterest.com/pin/444237950713756908/
4) This is Melusine, a mythological faerie who was cursed to turn into a snake/fish from the waist down every Saturday. When transformed, she spent the day soaking in a tub. When her husband insulted her condition she turned into a dragon and flew away. This reminds me a lot of what its like to have Fibro. Its like a curse people dont understand, our capabilities differ depending on the day, and its soothing to be in water. http://www.pinterest.com/pin/444237950714585743/
Comforting quotes, the first of which comes from a series that got me through a hard time:
http://www.pinterest.com/pin/444237950713913136/
http://www.pinterest.com/pin/444237950713903054/
http://www.pinterest.com/pin/444237950713903048/
http://www.pinterest.com/pin/444237950715128776/
http://www.pinterest.com/pin/444237950715128782/
http://www.pinterest.com/pin/444237950716388764/
http://www.pinterest.com/pin/444237950716026613/
My Illness Is Real: http://www.pinterest.com/pin/444237950716564571/
I thought Id also include some other Fibro-related images that Ive come across on Pinterest; the second set of links are more cheerful. Id love to hear what anyone thinks about them whether you can relate or even if you disagree with any and Id also love to see any you may have found if youd like to leave me a link.
What We Go Through
No. 1 Cause of Death for Fibro Patients: http://www.pinterest.com/pin/444237950716789501/
Fibromyalgia by ~shadowleoparddreams on deviantART http://www.pinterest.com/pin/444237950713389639/
Fibromyalgia by *astraldreamer on deviantART http://www.pinterest.com/pin/444237950713389637/
Pain Changed Me: http://www.pinterest.com/pin/444237950713738291/
When You Ask a Fibro Person How Are You? http://www.pinterest.com/pin/444237950716593768/
Having an Invisible Disability: http://www.pinterest.com/pin/444237950715130513/
Fibromyalgia Problems: http://www.pinterest.com/pin/444237950716789494/
Please Dont Judge Me: http://www.pinterest.com/pin/444237950715130486/
I Have An Invisible Illness: http://www.pinterest.com/pin/444237950716388850/
Fatigue: http://www.pinterest.com/pin/444237950715130479/
Princess and the Pea Syndrome: http://www.pinterest.com/pin/444237950715130565/
Humour
Fibromyalgia Humour Badges: http://www.pinterest.com/pin/444237950716405741/
Getting Out of Bed: http://www.pinterest.com/pin/444237950716405730/
Taking A Nap: http://www.pinterest.com/pin/444237950716405736/
Night and Day: http://www.pinterest.com/pin/444237950716102209/
Awake At Night: http://www.pinterest.com/pin/444237950716388799/
This Is Your Brain: http://www.pinterest.com/pin/444237950716796653/
I Survived Another Day: http://www.pinterest.com/pin/444237950716405752/
I Gave You a Diagnosis http://www.pinterest.com/pin/444237950716405757/
Exhaustipated: http://www.pinterest.com/pin/444237950715129841/
Tired: http://www.pinterest.com/pin/444237950715425325/
Woken For No Reason: http://www.pinterest.com/pin/444237950715677067/
Fibromyalgia Advice: http://www.pinterest.com/pin/444237950715129848/
Yes I Do Have a Disability: http://www.pinterest.com/pin/444237950713738301/
Fibro Flare: http://www.pinterest.com/pin/444237950715129843/
Im So Happy I Got This Illness http://www.pinterest.com/pin/444237950716388796/
If I Woke Up and Nothing Hurt: http://www.pinterest.com/pin/444237950715130124/
If I Looked As Bad As I Feel: http://www.pinterest.com/pin/444237950715130500/
This is one of my favourites because often when I wake up I think I feel like the Tin Man.
Exercise To Fibro Patients: http://www.pinterest.com/pin/444237950715130145/
Characters Who Inspire Me ... maybe you can relate too?
1) Lisbeth Salander from The Girl with the Dragon Tattoo, a strong woman who has had to overcome physical challenges and pain: http://www.pinterest.com/pin/444237950713698842/
2) Arya Stark from Game of Thrones, who wanted to learn to swordfight like her brothers. Her instructor taught her that there is only one god, the god of death. Whenever the god of death comes for her she must always tell him, Not today! This is the kind of attitude I need to have about my health issues that they will never defeat me.
http://www.pinterest.com/pin/444237950715799615/
http://www.pinterest.com/pin/444237950713965307/
http://www.pinterest.com/pin/444660163178614679/
3) Beatrix Kiddo from Kill Bill. Though her feats were unrealistic, she definitely experienced pain and atrophy. In the scene pictured here, she has woken from a coma after 4 years and is unable to use her legs. http://www.pinterest.com/pin/444237950713756908/
4) This is Melusine, a mythological faerie who was cursed to turn into a snake/fish from the waist down every Saturday. When transformed, she spent the day soaking in a tub. When her husband insulted her condition she turned into a dragon and flew away. This reminds me a lot of what its like to have Fibro. Its like a curse people dont understand, our capabilities differ depending on the day, and its soothing to be in water. http://www.pinterest.com/pin/444237950714585743/
Comforting quotes, the first of which comes from a series that got me through a hard time:
http://www.pinterest.com/pin/444237950713913136/
http://www.pinterest.com/pin/444237950713903054/
http://www.pinterest.com/pin/444237950713903048/
http://www.pinterest.com/pin/444237950715128776/
http://www.pinterest.com/pin/444237950715128782/
http://www.pinterest.com/pin/444237950716388764/
http://www.pinterest.com/pin/444237950716026613/
Thanks for posting this. After looking at everyone of them I came away with four thoughts:
#1 - Some were excellent
#2 - Some were great
#3 - Some were good
#4 - Some made me feel worse
When I feel particularly bad I look through these and they help me feel less alone, that my struggles are recognized, and that they're not my fault.
I think the links under Humour are the least likely to make anyone feel worse.
Susan