Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hello Fibro folks,
Just checking to see who uses Lyrica? I started 75 mg recently, up from 50 mg twice a day, and think this will eventually be upped. I'm still not sleeping well. I had to go back on Melatonin because of the lack of sleep. Of course, the sleep interruptions also have to do with the pain from my low back, but I'm no stranger to insomnia. Have had it since I was 16 years old.
Anyone have any ideas? I was thinking of adding SamE back to my routine of vitamins, and supplements, to see if with the Lyrica it might help. I understand no two cases of FM are the same... just looking for some input.
Thanks in advance,
Here's hoping for less pain for us all!
XOXO
Just checking to see who uses Lyrica? I started 75 mg recently, up from 50 mg twice a day, and think this will eventually be upped. I'm still not sleeping well. I had to go back on Melatonin because of the lack of sleep. Of course, the sleep interruptions also have to do with the pain from my low back, but I'm no stranger to insomnia. Have had it since I was 16 years old.
Anyone have any ideas? I was thinking of adding SamE back to my routine of vitamins, and supplements, to see if with the Lyrica it might help. I understand no two cases of FM are the same... just looking for some input.
Thanks in advance,
Here's hoping for less pain for us all!
XOXO
I did try Cymbalta. I was seeing a neurologist for another issue, and he put me on it. I was on it a whopping 3 days. In that time , I went from a somewhat smiling, and animated, person to a woman who had NO animation. My blood pressure shot up. It ended up being 155/112 on my worse day (day 3). I felt like a lump of poop! LOL! If a train was headed my way, I wouldn't have had the gumption to move. The nausea... which I have every day.... became horrible! I
went off it in 3 days, and called the Dr's to tell them. I had to call off work because I felt horrible! Even my co-workers said I looked depressed. I haven't tried savella.
The Rheumatologist put me on Lyrica. I had a great inital response, but within two months had to go back because I started breaking through. I get the strangest pains in my legs. I constantly have pain in my upper back, which I always describe it as popping rice pops.
Funny thing, before the Lyrica I didn't even know my muscles hurt because my joints were screaming so loudly. After a couple days on Lyrica, I "heard" my muscles. It was the strangest thing! Before he upped me from 25 to 50 mg, it was as a dial would turn up. Like a gas stove being turned from low to high. I would have a slow progression of pain until I was very uncomfortable.
I've been hurting since I was 14. I am now 41. I can't believe it's been this long, and just now am finding "relief."
The Rheumatologist is a sweetie! He's been so kind to me. I'm usually written off, within minutes, of explaining my symptoms. I don't even try to talk when I see a Dr anymore. I just write a list, and hand it to the Dr. LOL!
I have learned to value sleep. I also have Epstein Barr, and if I don't sleep, I tend to not only get the pain from the Fibro, but get physically ill. It's usually a cold that lasts for a while. :::sigh::: I am taking the melatonin but it doesn't seem to really be working.
I've spent the last 4 nights tossing and turning. Doesn't help any I also have a pinched nerve in my lower back, and cervical stenosis. My arms go numb and I wake up with my hands closed in the mornings. Sometimes, it takes me 15-20 minutes before I can open my hands to use them.
I am slowly coming to the realization I may have to deal with this forever. No one has been able to answer why my hands do what they do. :::tears:::
I've heard from other people that Cymbalta works great! It sounds like you have had much success!! That's awesome! I hope your experimentation doesn't end up being a long one, and that you can hone in on what will work for you!!
I'm afraid to go off the Lyrica for fear of not feeling as "good" as I do on it. I no longer need a 3 hour nap, after getting (supposedly) 8 hours of sleep.
Thank you for your hug, and response. It's great to have someone who understand what you're going through. Most of my co-workers, and family don't really understand. They don't understand why I get fatigued so easily, and try to measure everything I do. Sad thing is, my co-workers are in healthcare.
Take care! :0)
Here's hoping for less pain for us all!
XOXO
I have tried lyrica and Cymbalta . lyrica made me depressed and suicidal the Cymbalta made me really dizzy . I take amitriptyline and now I just started nabilone hopefully it will help. my pharmacist went to Texas to a pain seminar and said it is all the new rage in pain clinics. I too have major problems sleeping I am up until 3 -or 4 each night and sleep in the morning.for a couple of hours off and on. I hope you find something, things work differently for everyone but it is good to listen take care big hugs isabee