Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
AdrianaIna
Has anyone had their symptoms worsen on prednisone? My doc put me on it as we continue the diagnosis process, but I quit after 8 days because I felt horrible. It exacerbated the arm pain; my muscles felt terrible and my wrist joints were NOT improved. I started having muscle spasms. One or two minor twinges went away, but otherwise, TERRIBLE! This was, of course, magnified since I couldn't sleep more than a couple of hours at a time---bad for musculoskeletal problems.
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Adrianne
I didnt even stay on it 8 days and withing 4 I gained 20 lbs probably.
Wild crazy dreams, pain the entire 9 yards.
I don't sleep, my blood pressure goes crazy (alternatively high and low) and I feel like I'm going to jump out of my skin.
For those with fibro and no diagnosed auto-immune disorder, who feel better when taking it - you need to re-visit your diagnosis as there could be something inflammatory going on that hasn't been diagnosed.
I find I can get alot more done. When I stop taking it the next week or two is quite bad.
I was put on Prednisone for a sinus infection as well, and I was truly expecting AMAZING results as I sat there on 20, 30, then 40mg of the most painful side effect medication I have taken. I was soaked from head to toe and went to the Rheumy's office and said this is what you wanted me to take next??? LOOK, LOOK!!!
He was speechless. This hurt me, my case in another way, he was so confused at it's affect on my body that he nearly dropped me as a patient!!! I cried as he talked about it.
Well, I stopped taking it immediately and will not ever take that steroid again. Yes, we are all different and then there is me, the physically deranged LOL jk I love me, it's my body that has the problem.
Hugs to you and to you all,
Eva
Short-term is bad enough - long term the side effects are even nastier including osteoporosis and cataracts. Back before they developed more effective asthma drugs I was on it off and on for years for asthma and I've been told by several doctors that's what caused my cataracts at an unusually early age.
I hope you didn't stop it suddenly because it can cause adrenal failure. So it's a pretty good sign you don't have RA/Lupus if you felt worse on it.
As for your body feeling worse. Take this for what it is worth because I've only heard of this second hand.. But for those who are taking it due to lymes they often feel worse before feeling better. Really worse where they question it.
If your doc was thinking of Lymes...then maybe this is what you are experiencing? Otherwise, you could also talk with your pharmacist about your reaction to taking the medication.
I guess I don't quite know what is going on with my body...you all know the feeling!