Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I am new to this support group. I made a decision to seek a support group after spending so much time being miserable because no one around me understands what I am going through.
I will make my background brief as possible. I am an african-american mother of six, married to a wonderful woman. I am a full-time nurse and have worked as one for 13 years. I am 36 years old.
My wife and I have been together for 11 years. Through ups and downs we decided to have more children. My twins are two. Other children are 16, 12, 11, and 7. A year after I had the twins my body began to go haywire. Hypoglycemia, bouts of fatigue and increasing pain that gradually was labeled as chronic.
Doctors were not helpful or knowledgeable. I switched doctors 3 times before I found one who would take me seriously. Finally, fm was my dx. I educated myself as much as I could and tried natural supplements for 6 months. I eventually went on prescribed medicine and was ok for 6 more months.
Recently, my meds are not working that well. My fatigue is more prominent and I can no longer keep up with the demands of my day to day life. My wife has a mental illness so her support is limited. My children are lazy...which is my fault because I was super-mom for so long. Family does not care. I have very little mental support and no physical support.
Some days I am ok. Most days I am pushing myself to do the bare minimum. I budget my energy and just try to deal with the pain.
Co-workers don't get it because I still work, even though I had to cut my hours. And of course, "I don't look sick." Then there are the days when I have to use a store motorized wheelchair and EVERYONE is staring at me. I am tired....all the time. I don't know anyone with this disease and most people have never heard of it. I spend my time trying to give the "short" definition but since I cannot give an exact reason for my pain I never get true empathy from anyone.
I know I wouldn't wish this on my worse enemy. Every-time I move, it hurts. That is all I know for sure.
I will make my background brief as possible. I am an african-american mother of six, married to a wonderful woman. I am a full-time nurse and have worked as one for 13 years. I am 36 years old.
My wife and I have been together for 11 years. Through ups and downs we decided to have more children. My twins are two. Other children are 16, 12, 11, and 7. A year after I had the twins my body began to go haywire. Hypoglycemia, bouts of fatigue and increasing pain that gradually was labeled as chronic.
Doctors were not helpful or knowledgeable. I switched doctors 3 times before I found one who would take me seriously. Finally, fm was my dx. I educated myself as much as I could and tried natural supplements for 6 months. I eventually went on prescribed medicine and was ok for 6 more months.
Recently, my meds are not working that well. My fatigue is more prominent and I can no longer keep up with the demands of my day to day life. My wife has a mental illness so her support is limited. My children are lazy...which is my fault because I was super-mom for so long. Family does not care. I have very little mental support and no physical support.
Some days I am ok. Most days I am pushing myself to do the bare minimum. I budget my energy and just try to deal with the pain.
Co-workers don't get it because I still work, even though I had to cut my hours. And of course, "I don't look sick." Then there are the days when I have to use a store motorized wheelchair and EVERYONE is staring at me. I am tired....all the time. I don't know anyone with this disease and most people have never heard of it. I spend my time trying to give the "short" definition but since I cannot give an exact reason for my pain I never get true empathy from anyone.
I know I wouldn't wish this on my worse enemy. Every-time I move, it hurts. That is all I know for sure.
This helps just to know that others are going through the same thing. I find that this is where others will understand what you are going through in a would or people who do know about FM or don't get it.