Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
HUGS from down south :)
PM me if you want to know more or chat more.
HUGSS,
Marie
When I was diagnosed initially, the NP looked me straight in the eye and told me that I would become a fibromyalgic cripple if I wasn't careful. He recommended hot baths, 30 minutes of walking at least three times a week and some light meds. I am on the lowest dosage of the meds that are available.
I have been doing very well about walking in the last few weeks and it has made a huge difference. I get up very early and walk. My neighborhood has a little block loop (.4 miles), a medium flat loop (.8 miles) and a big honking loop with a killer hill in it (1.5 miles). I try to to the big loop or two medium ones in the morning and I like to try to make a couple of medium loops in the evening.
I have more energy and things hurt less.
I also make a big deal out of stretching my calves and hamstrings. This also seems to help. I have an old bathrobe belt that I use to help me stretch.
The big kick in the pants is that when we feel poorly, we don't want to move at all, but for me, that just makes things worse. If I feel like total poo, I just slowly walk the little loop. And failing that, or int he event of bad weather, we have a treadmill that I can do a little bit of walking on.
Today I go to the gym a few times a week. I do full body weight training plus I ride my bike for cardio. I am in great shape and have my fibro under control. A few weeks ago I went on an interior camping trip which involved a 3 hour paddle by canoe and sleeping on the ground for 3 nights. I couldn't have dreamed doing that 4 years ago.
I started out with baby steps (walking around a mall). I increased my walking gradually.
Today, even though I have bad flares sometimes, because of exercise, by flares do not last very long. Even when I get sore from any physical activity, my recovery time is a lot faster and the pain level is tolerable.
I would encourage all to try exercise.
However many fibro patients are in a vicious cycle where they can't exercise because they hurt too much, then they become deconditioned, and then exercise itself hurts, then they gain weight, then they take Lyrica and gain even more weight...
I needed to get my vitamin D levels up before I could go beyond walking and gentle stretching. I also needed magnesium supplements with malic acid to get my muscles to relax enough to exercise. I needed decent opioid pain meds, which are rarely Rx'd to fibro patients. Once I did all those things, I dropped 15 of the 20 lb I gained and returned to my super-athletic roots! (I was a figure skater and coach before fibro.)
Eva
It was time to see a doctor and do what he said. That meant Lyrica and Physical Therapy. I did two rounds of PT, once for Fibromyalgia and once for what was supposesd to be DDD in my neck, but my shoulder problem revealed itself and took over the second time. After that, my Rheumatologist gave me a Cortisone injection in the bad shoulder.
It wasn't until then that I could even begin to do the PT exercises at home with any consistency. Over months, and months, and months I have seen great improvement in my flexibility and range of motion, not just in my shoulder, but everywhere. I no longer have that Plantar Fasciitis type of pain in my feet.
I do 30 minutes of PT stretching and strengthening exercises five days a week, before I get up in the mornings. My mornings aren't a mess anymore. I get out of the house on time now.
I went on "Protein Power" and lost the 25 "Lyrica Pounds" and 5 of the extra pounds I was already carrying. Throughout all of this time, the doctors kept looking for additional factors contributing to my continued pain and fatigue. I'm being treated for a severe Vitamin D deficiency and my shoulder, gait and balance continue to get better.
I can actually take the dog walking now, for his potty breaks, instead of just letting him go in the yard. I'm starting to feel some excitement now, at the thought of doing more. I bought a new bike and have ridden it a few times. I'm even stating to feel like I might just be ready to try "Couch To 5K".
No matter how many flares I managed in the past, with yoga and bike riding, there was no way I was going to scrape myself up off of the floor two years ago without my doctor's help. There were no quick, easy answers. It's been a very difficult, uphill climb and I've still got a long way to go, but it's worth it.
Don't feel bad about not being able to exercise! We are all at different stages with this illness. Just because we can do something doesn't mean you should be able to do it too! I am working out but like I said, I pay for it. I have a lot of pain afterwards. I just keep hoping that soon it will be better. I went 6 months where all I could do was lie on the couch. I couldn't have gone to the gym no matter how badly I wanted to. Today I went shopping with a friend and I stumbled badly twice. I just couldn't lift my feet properly. I may be getting to the point where I have to give up a lot of what I am doing now. I hope not but I don't know where this illness is going to lead me. So please don't think that I am saying you should be exercising. If you can't, you can't. All we can do is the best we can and pray that someday we will get better.
Hugs,
DJ
But I did it anyways. Even if I was using my cane...hobbling...I pushed myself to do something. The dishes, just 1 load of laundry....Something to push myself. And it worked. I pushed through the flare.
I don't fully understand Fibro and how and why it makes me feel like I'm 2 feet in the grave waving my last good bye to everyone one day and the next week feeling like my leg is about had it and it's ready to pop off. Or how I can function now.
What I have learned is this. Nothing really does break down on us. Yah, it may feel like our elbows are gonna fall off...or our head if we hear or see one more loud sound or bright light, it's gonna deflate or something. But it never does.
Because of this I've taken on that attitude that if something hurts, I'll nurture it some...if it persists, I'll get my happy butt into the docs office. Otherwise, I push through it all! For as much as my family puts up with my whining & complaining, they deserve that much from me back. So they are my source of energy even when I'm running 1/2 tank past empty.
So shtupndance hun....you're absolutely right....moving is the best treatment!