Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
somebody shoot me please!!!!
i was tossin n turnin last night at 11.... where usually i'm in bed by 8 and sleeping by 9 or 10.
fell asleep for a short bit then woke up tossing and turning in PAIN around 1 AM. then had to get up and pee for the 4th time that night....
tossed and turned for God knows how long and PAIN was getting worse....
starting to get angry about it. n then i eventually fell asleep for a short bit...suddenly my phone beeps with a text message at Lord only knows what time in the morning, maybe 5 or so. being the pain i'm already in and how hard it was just fall asleep, the text message reads "WAKE UP FEELING BLESSED TODAY! IF YOU ARE HAPPY AND THANK GOD I WOKE YOU UP THIS MORNING WITH THIS MESSAGE, PLS SEND IT TO 10 OF YOUR FRIENDS INCLUDING ME!" ......are you freakin serious??!!!!! GRRRRRR!!!!!!!
and of course i get up to pee AGAIN, then go back to bed.... and of course as you all may have guessed, i lay awake for hrs after wards, in TOO much pain to go back to sleep!!!!
finaly! i get out of bed PISSED off not knowing why every freaking inch on my body HURTS SO BAD!!! and why does every freakin joint feel like i got vice grips about to crack em open?????
then it hits me.... well DUHHHH!!!!!! i ran out of gabapentin yesterday! and even tho i called in the refill last week (comes in mail) i figured that by now it would have gotten here! i feel stupid..... if i would have "known" this YESTERDAY, i would have taken some oxycodone last night before bed plus some 1,600 mg of valerian! sheesh! what's wrong with me? if any of you find my brain out there, please notify me or just drop in the mail box, it has a "if found mail to: yada yada" thing on it..... thanks!
i was tossin n turnin last night at 11.... where usually i'm in bed by 8 and sleeping by 9 or 10.
fell asleep for a short bit then woke up tossing and turning in PAIN around 1 AM. then had to get up and pee for the 4th time that night....
tossed and turned for God knows how long and PAIN was getting worse....
starting to get angry about it. n then i eventually fell asleep for a short bit...suddenly my phone beeps with a text message at Lord only knows what time in the morning, maybe 5 or so. being the pain i'm already in and how hard it was just fall asleep, the text message reads "WAKE UP FEELING BLESSED TODAY! IF YOU ARE HAPPY AND THANK GOD I WOKE YOU UP THIS MORNING WITH THIS MESSAGE, PLS SEND IT TO 10 OF YOUR FRIENDS INCLUDING ME!" ......are you freakin serious??!!!!! GRRRRRR!!!!!!!
and of course i get up to pee AGAIN, then go back to bed.... and of course as you all may have guessed, i lay awake for hrs after wards, in TOO much pain to go back to sleep!!!!
finaly! i get out of bed PISSED off not knowing why every freaking inch on my body HURTS SO BAD!!! and why does every freakin joint feel like i got vice grips about to crack em open?????
then it hits me.... well DUHHHH!!!!!! i ran out of gabapentin yesterday! and even tho i called in the refill last week (comes in mail) i figured that by now it would have gotten here! i feel stupid..... if i would have "known" this YESTERDAY, i would have taken some oxycodone last night before bed plus some 1,600 mg of valerian! sheesh! what's wrong with me? if any of you find my brain out there, please notify me or just drop in the mail box, it has a "if found mail to: yada yada" thing on it..... thanks!
HUGS and feel better today!
ps, your brain is on it's way back
how long have i been on it? hmm.... i think i started in December. i'm up to 600mg 3x a day. at 1st i noticed a HUGE difference in the nerve pain i was having and skin pain.
but then my neurologist kept upping it for me to help my daily migraines (as a preventative). it helped somewhat. but now that i have ran out of it, i feel WAY more pain than my usual days. i mean, it doesn't get rid of ALL the pain, but enough where most days i don't feel the need to shoot my self, if you know what i mean.
but everybody's body is different. so this may be working for me but it may not be working as well for you. try NOT taking it for 2 days and see if you feel like a train ran over you..... if so, then you got your answer. that's the best i can tell you unless you have a better idea of what to do.
well i guess, try it out and let us all know here what the results are. thanks a bunch!
yes i started getting on it for the nerve pain all around my body but when i got sent to neurology for head splitting pain everyday, he said it should help since i can't take other migraine meds.
BUT i have to say.... Cymbalta the newst med i'm on, has helped the daily head pain more than any other medicine they have tried on me.
to answer the question about being weaned on or off gabapentin: i know for a fact that we have to start out on a VERY LOW dosage and work our way up. my doc statedme on a dosage even as low 100 mg then workin my way up to 300mg then to 600 mg 3x a day. but to be weaned off it? not sure. i know that i've run out so i currently HAVE NONE at the moment and it SUCKS! pain everywhere, even in places i didn't know it helped.
so i hope this helps you all that needed answers.... i'm no pharmacist, but i told you how it effects ME and what i DO know about it. the rest you'll have to talk to your doc about, and make sure it's a GOOD doc, too! Lord knows those are hard to find.
I have been MIA for a quite some time---for that I apologize---it has been a wild and wooly month full of surprises (unfortunately none of the good nature). I will not take the time to elaborate now, suffice to say, as per usual we survive as best we can.
All that aside, I would like to inform you of a government study focusing on chronic illness. It is the first study of this kind and is funded by the National Institute of Health and being facilitated by the University of Michigan and the Non-Profit group Advocacy for Patients with Chronic Illness. Here is a link for more informationit is also the link for participating in the survey. Please take the time to participate.
TAKE THE CHRONIC ILLNESS SURVEY
Have you always wished that you could tell your health care story to the government? Here's your chance.
Advocacy for Patients with Chronic Illness, Inc. and the University of Michigan Center for Managing Chronic Disease have been awarded a grant by the National Institutes of Health (NIH) to study the obstacles facing the chronically ill, interventions that do and do not work to surmount those obstacles, and ways in which the work done by the NIH, including research and clinical trials, may be helpful to patients with chronic illnesses. With the help of twelve patients and caregivers, we have drafted a survey which is available online at http://chronicdisease.survey.sgizmo.com.
If you would like to take the survey, please do so. If, for any reason, you are unable to take the survey online, or you would prefer to be interviewed by telephone, please call (860) 674-1370 or email patient_advocate@sbcglobal.net. She will provide more details about the study and arrange for an interviewer to call you to schedule the telephone interview at a time convenient to you.
Thank-You!
The basis of the survey is to answer the question is our government meeting the needs of the chronically ill? We all know the answer to that question---now is the time to let our voices be heard and counted.
Please forward this survey to everyone and anyone who is touched by chronic illness.
Also-please take note of the mission of Advocacy for Patients with Chronic Illnessthere are so many posts on this site about disability application problems. They can help!
http://www.advocacyforpatients.org/
On a personal noteI hope to be able to find my way back to this site more regularly after our lives get a bit more under control. Right now I feel like I am paddling as fast as I can and am just barely keeping my head above water.
All my best to you allagainPLEASE PARTICIPATE IN THE SURVEY AND PASS IT ON---IT IS OUR HEALTH THEY ARE ASKING ABOUT!!
Stephanie