Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
maybe there's more to her diagnosis. Or do you feel you maybe doing too much for her. If she lived on her own she would have to push herself more as awful and challenging it is.
I hope you get the best physician help your daughter needs. Get to the best specialists out there where you live. Or if you need to travel to find one I would if money/insurance allows.
I wish you guys the best.
There are things people with fibro are more prone to get - but not everyone with fibro gets them.
I am not able to be as active as I would like to be - my fibro has always been severe. Your daughter does need some activity everyday - even walking around in the yard is better than nothing. I move about the house, do dishes and laundry most days, make dinner every day and get out in the yard when it is warm enough - and often that is my limit - because of the pain and fatigue . I am hoping to start short walks as the weather gets better if my hip will tolerate it - right now my hip problems have flared up.
Daily stretching is good too.
Milily - she tries to do a little each day, trying to push to the edge of what is possible without going backwards. She has been moving around a lot more today so it looks as though the vitamins etc are working.
I am glad you joined our group and I respect how you are trying to learn more and that you are taking care of your daughter. Seriously, there are people that wouldn't. Plus, many families of people with fibro don't believe in it or just cant or wont get it and it leads to separation of family - which is very sad..
Has your daughter had blood work that checks Vit D, thyroid levels, and B 12 - those being abnormal can make fatigue worse . You had told me you were planning and asking her Dr about CFS next appt - so let us know what you find out.