Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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fibrosucks 01/09/2010

All this week I have been so tired and achy. All I have wanted to do is sleep and when I am up I am so stiff and I ache so bad I can hardly stand it. We have had really cold weather here and I'm wondering if this has anything to do with it? I felt the same way last year at this time. I am on a Fentanyl patch 25 mcg which I'm thinking of quitting because it apparently isn't doing any good. Doc tried to bump it to 50 mcg but I got really sick from that. I take Vicodin for BT pain but it seems I am taking more of that lately. I'm really not sure what to do. I wonder what med out there is the equivalent of 25 mcg fent and Vicodin 5/500? I had been on Neurontin with no effect, 300 mg 4 x day, so I axed it. Why take it if it does not work? What meds out there actually work? I've tried Lyrica and Cymbalta, neither of which agreed with me. I really don't know what to do but I sure don't want to continue feeling this hideous. Any thoughts on what to try next med wise would be greatly appreciated. My doc does not know a lot about fibro so we are muddling through it together as I don't have insurance at this point either and paying huge office visits for a specialist is out of the question.

deleted_user 01/09/2010

I get that way sometimes where all I want to do is sleep. And then some weeks/months I can't sleep at all. It sucks. I go to a pain specialist and he works well with me. I am tired of taking so much pain meds. Sometimes it doesn't work because the body gets so used of the medication. I switch up the doses ( 1 pill to 2 pills, 2 pills to 1 pill) and that usually does the trick. I have skelxton ( you want to be careful with this. I only take one at a time because it makes you seriously dizzy to the point you can't see) ( a muscle relaxor) Naproxin, Hydrocodone, Oxcarbinpinze. This usually helps me better than the Lycrica and all that. I have tried several pills and several combos. the only bad thing is that if I run out of either of these pills it hurts like hellish.. Have you tried thinking of using another dr? My dr gives me a month supply of hydrocodon. but I got to be careful using it so I do not run out earlier and than not have it for a week or two. Med combo's are a hit and run for your body ( any bodys body) Slexton (sp?) 800 ml 3 times a day works wonders. I do not have it right now till monday because cvs is out but that works well. I hope you find some relief. Yes Fibro sucks so bad. Does it feel like your skin wants to jump out of your body? you want to kick and scream and yell? thats how I feel. again usually the combo of these meds work. Not usually complain but every now and then. hope you have a good night.

fibrosucks 01/09/2010

Yeah, sometimes I do feel like my skin wants to jump out of my body but only when I'm agitated. I take a Xanax and it goes away.

deleted_user 01/09/2010

Fibrosucks...I LOVE THAT NAME!! It is SO fitting, isn't it? I'm so sorry you're feeling so rough. I'm in the same boat as you. I wrote a comment (it's on the advice board) and got some wonderful advice as far as meds go--I will be checking them out as my doc and I will be meeting next week to revise my RX plan. Just can't handle this severe pain anymore. I've already taken so many meds that either haven't worked or give me horrible side-effects. It seems that the Fibro just laughs at them all, doesn't it?! Wish I could give you some great advice, but all I can tell you is Therma-Care heatpacks keep me going when the pain is out of control. Also, lots of soft pillows when you try to sleep and soft clothing when you can. And just know that there are a lot of loving people here that really care about how you're feeling--I just discovered that and it made a world of difference for me! Wishing you GENTLE HUGS and COMFORT...

CajunTiger 01/10/2010

I know how hard it is deal with this mess!! I take Celexa and Relafen each day....thats anti-inflammatory and anti-depressant...plus lots of supplements....Magnesium helps with pain, and Wonderbaby suggests lechitin, which I'm about to add....I list what I use in my journal entry Nov. 27, 2009...

Plus lots of easy stretching, heat or ice when necessary....and a TENS unit...

Hope you find what works for you, and HUGS form down south :)

deleted_user 01/10/2010

I found that none of the NSAID's (Non-steroidal anti-inflamatory drugs) work for me at all. Ironically the thing that works to take the edge off is Tylenol 8hour combined with heat packs (you can buy ones that heat in the microwave which works out much cheaper), neither of which require a doctor's prescription.

Zzzzowl 01/10/2010

The weather does affect us all to varying degrees, I know a lot of my Friends on here are feeling the same way.
How about looking at therapies instead of meds to see if that can help you more.
I take co-codamol 30/500mg QDS and Balofen 10mg TDS, 15mg when the spasm get worse. Both are script meds though.
Hope you find relief asap. Take care, hugs,Owlxx

fibrosucks 01/10/2010

Well, at least I felt pretty decent today. Still taking the Vic for breakthrough though. The weather may actually warm up a little this week so maybe I will get a few good days before the next round of "brrrrr" sets in.

deleted_user 01/10/2010

Cajun Tiger..is it magnesium stearate or mealate (sp) ???

deleted_user 01/11/2010

I have been on Savella for a while now.. at first I thought it was helping me , I believe it actually did ease some of the pain, but now, the bad days are out-weighing the good ones.. so what do I do? Keep taking it or try something else.. I have already been on Cymbalta, didn't work, I cannot take lYrica, I couldn't speak when I took it, I knew what I wanted to say, but I couldn't get it to come out, very scary. This is one of the most frustrating diseases, along with migraines.

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