Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Dixe4me 04/26/2008

That our journals could be removed? I thought those were personal and we could put anything we want to in them. So what happens, if someone reports you, it can be pulled?
I am shocked!

deleted_user 04/27/2008

That is a good idea Dixie thanks,

Vonny02 04/27/2008

DS say that this site is not moderated, if thats true how come I get my photos pulled? who is it that checks in on us. I feel that someone is looking over my shoulder all the time to see if I make a boo boo... if its not moderated then how come journals, photo''s and posts get pulled.. its there a troll patroling DS, is it policed by trolls.. its so smacks of BIG BROTHER!

ozfm 04/27/2008

They'll pull a journal cos some snot nose complains, yet they let some of these posts get so out of hand that ppl leave...... "shakes her head" me no understand.

deleted_user 04/27/2008

You are right, if someone complains about them. THere are 100000000000000s of people that have joined DS, there is no way they can look at everyones journal or picture, Let alone some people change their pics and journals daily.
You are so right Vonny, thanks for pointing it out,.

deleted_user 04/27/2008

You so said it Vonny!!!! I think certain people on this site are working hand in hand with DS. Big brother for sure!!!! And yes why are the nasty posts not shut down? Cause some body likes the drama I would say.

deleted_user 04/27/2008

that's not all they can do. i wrote a discussion on the off board and it disappeared. i know i hit the add button. i don't keep anything. my account is basically empty because it all shows up on google. boy that threw me for a loop. no one explained as i was typing my life story that it would be on the internet for the world to see. that hurts.

deleted_user 04/27/2008

Only you can see everything on google. If someone types your name in they will not see everything but good to lock journal and keep info on profile page re where you live etc. not to revealing.

deleted_user 04/27/2008

Yes I did know about this but had forgotten about it. I have seen journals removed on others pages because they became a form of abusing some members. Mine have never been deleted but do know of some that have been. And it is always because someone complained and not because DS monitors them. But if you check the bottom of this board each day, there are peoples journals and photos highlighted each day. So that leaves us a little vulnerable to some that may not be on our friends list. I do keep my journals locked for just friends unless it is an article that I want to share with everyone. So in the event that you need to rant or vent in your journal, just don't use any other persons name that you might be having a problem with. Just use a little wisdom and go straight to the source of any problem that you may have here. ;-)

deleted_user 04/27/2008

I do just like Dixie does and have from the beginning. I never post anything but scripture and it is always open. That is just me...Love.........Helen

deleted_user 04/27/2008

WOW, Dixie...I had no clue they could do that! I never write anything bad about anyone here, but still....I thought if we locked them to "just Friends", we had some kind of protection for oursselves.
I know some people are friends with others and they report back and forth what so and so may have said. That is SO NOT COOL!

Our LOCKED journals are nobodys business but ours and our friends, on our friends list. I thought that was WHY we could lock them...so not just ANYBODY could read them? It does reek of BIg Brother, and I think its a damned shame!

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