Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

4,403 Members

50,123 Posts

0 Online

Godstrength 03/24/2013

So 6 years ago when newly diagnosed the fibro. was just in my upper body and they labeled it as Myofacial something> They said "be glad it;s not in your legs" I think I spelled that wrong sounds like it's just in my face. It was the upper body. Anyway 6 years later it is full blown legs, fatigue, fog etc. Believe me I fit in well at this site. Should I go back in and change my records? Thinking of changing our life Ins. policy but wondering if a change in the diagnosis would be bad. OR if it even matters because I know what I have.. suggestions?

Emily710 03/24/2013

I'm not sure how you can change your records? You mean medical?

deleted_user 03/25/2013

Hi I don't know what insurance reads bu twe found out that if you change it then you end up paying more and it affects your morgage. Look up your insurance before you do anything hope this helps isabee

fibrolizzy 03/25/2013

I would think if you've been back to your doctor for meds and checkups, he would have noted that the pain has spread to your legs, and maybe wrote fibro. I don't know, but that's just my thought.

You might ask him about it.

maddiesgrammie 03/25/2013

you could always ask for your med.records to be updated.but a word of warning,get proof that your records are updated with all CORRECT info.dont take anyones word,be sure and check it out for yourself.mg.

Godstrength 03/25/2013

Thanks..I meant medical records and believe it or not I hadn't been back to my regular Doctor...I have been going to nurse practitioners or just leaving messages...Had such a bad experience with him in diagnosing the fibr. that I avoid him like the plague!!

PeaceN2You 03/25/2013

What kind of change are you thinking of making in your life insurance? If you're thinking of increasing the amount then you will probably have to go through medical underwriting and the new diagnosis could make a difference, even though it's not a terminal illness. I have known people who were denied life insurance because of the diagnosis. It makes no sense, but it happens.

deleted_user 03/26/2013

Below are two links about myofascial pain syndrome...it really is not about your face, even though the name makes it sound like a face problem!

It's actually a chronic condition that affects the fascia, which is the connective tissue that covers the muscles.

http://www.webmd.com/pain-management/guide/myofascial-pain-syndrome

In addition, here's info on the differences and similarities between fibro (chronic fatigue syndrome) and myofascial pain syndrome:

http://chronicfatigue.about.com/od/whyfmscfsarelinked/a/myofascialpain.htm

Godstrength 03/26/2013

Thank You Thank you Thank you!!

Join the Conversation