Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I wanted to isolate this feeling that I have had everyday for the last 7 years (since I have had Fibromyalgia).
I wasn't sure whether or not it was a part of Fibro or not, but as I questioned my doctors about it, answers, or the lack of answers, has made it clear they have on idea what to attribute it to. So I am going to ask you if you experience it and if you think it is a part of the Fibro Brain Fog, or something else.
I wake up, and go through everyday feeling like I am high, impaired, and like I am on my first day with the flu. You know, that "off" feeling you have the day before, or the very first day of a bad flu, before the congestion takes hold. I feel like I am living sort of in a bubble, able to view life going on around me, but sort of invisably isolated from the full experience of it.
Keep in mind the feeling of being high, and add the feeling of being in a constant battle not to fall asleep, or a fight not to fall into an even deeper level of mental disconnect.
Remember what it was like whenever you where in the situation where you were fighting to keep your eyes open (maybe during a class or meeting). That is the mental battle I feel I am in constantly. From the moment I open my eyes in the morning, until a fall asleep at night. And no matter how much rest I have, or whether I am having a "good" day or a "bad" day, this strange feeling is with me.
One doctor said it could have to do with the meds I was on. But I tried to tell him that I have been aware of this strange consciences long before I was prescribed any drugs, and it continues even now. And I have been off of all pharmacutical drugs for almost a year now.
Another Neurologist, one at the prestigious Standford Hospital, said I was on the verge of going into a "Fugue" state. I had to look that one up. He also said all of my Fibromyalgia symptoms was due to this Fugue state. That I could be well whenever I figured out and faced what it was in my past that I wanted to escape from. So, I escaped from him and of course never went back there, and never suffered the "Dissociative fugue usually involving unplanned travel or wandering, and is sometimes accompanied by the establishment of a new identity," that this doctor predicated for me.
But still, this feeling remains.
Do any of you experience this. Can you describe it better, or how do you experience this?
I wasn't sure whether or not it was a part of Fibro or not, but as I questioned my doctors about it, answers, or the lack of answers, has made it clear they have on idea what to attribute it to. So I am going to ask you if you experience it and if you think it is a part of the Fibro Brain Fog, or something else.
I wake up, and go through everyday feeling like I am high, impaired, and like I am on my first day with the flu. You know, that "off" feeling you have the day before, or the very first day of a bad flu, before the congestion takes hold. I feel like I am living sort of in a bubble, able to view life going on around me, but sort of invisably isolated from the full experience of it.
Keep in mind the feeling of being high, and add the feeling of being in a constant battle not to fall asleep, or a fight not to fall into an even deeper level of mental disconnect.
Remember what it was like whenever you where in the situation where you were fighting to keep your eyes open (maybe during a class or meeting). That is the mental battle I feel I am in constantly. From the moment I open my eyes in the morning, until a fall asleep at night. And no matter how much rest I have, or whether I am having a "good" day or a "bad" day, this strange feeling is with me.
One doctor said it could have to do with the meds I was on. But I tried to tell him that I have been aware of this strange consciences long before I was prescribed any drugs, and it continues even now. And I have been off of all pharmacutical drugs for almost a year now.
Another Neurologist, one at the prestigious Standford Hospital, said I was on the verge of going into a "Fugue" state. I had to look that one up. He also said all of my Fibromyalgia symptoms was due to this Fugue state. That I could be well whenever I figured out and faced what it was in my past that I wanted to escape from. So, I escaped from him and of course never went back there, and never suffered the "Dissociative fugue usually involving unplanned travel or wandering, and is sometimes accompanied by the establishment of a new identity," that this doctor predicated for me.
But still, this feeling remains.
Do any of you experience this. Can you describe it better, or how do you experience this?
Yes this was common for me when I was on lyrica nd neuronton and gabapentin after I went off them it got better. so have to decide what works for you. I also get the foggies if I take amitripltine I don't sleep at night and then dose all day it's horrible. I hope this helps you. isabee
Hope this helps!
I get double fog with RSD! Your description is close to the fog I live with. My memory is probably the most frustrating for me.
I've done a lot of research and had many drs back it up, we lose cognization skills and memory. Add fatigue and for some meds, it can be a wicked combo.
I'm on Topamax for my spasms, it alone causes fatigue in the eyes, body and mind. Think of that with the other symptoms of fibro. That is just one of the meds that I'm on. All of these meds have side effects.
I can feel like a walking zombie!
Ok numb mind and all, is your avi the fall of Rome? Kind of reminds me of how I feel LOL.
Toni
Rsimmons- your description was excellent.
LuLu
Both of those could also be attributed to ADD so I'm never sure where they come from.
Isabee wish I could stop taking my gabapention but the nerves just will not let allow me .....life is better a lot better with them, now what was that question?
Hi nanceesie, I'm sincerely sorry that my avatar gives you the willeys. I've selected it because on a very personal level it depicts perfectly how I feel most of the time. I hope someday to feel differently, then I promise, I will change it.
LeePoe, oh my goodness you cracked me up! I needed that giggle. Thanks :-)
Hope this made some sense. Lol!
Take Care, Dawn
I get embarrassed as well. It troubles me how much it is effecting my ability to remember even the faces of people I have recently met nowadays.
And names. It's so bad that now even as I mentally repeat a persons name as I'm shaking their hand, by the time I release their hand I'm thinking: "Shoot! Who was that again." Dang!