Hey Sal, I'm so sorry you are hurting so bad...I'm right there with you....its so true that we think our friends could give us a little more support than they do....unless you have walked in a persons shoes that has fibro, you really just dont know how it feels or how it affects our daily lives. The pain, sleeplessness, frustrations, tiredness.....so glad I have found this online support...its truelly what I needed.....sending you an online hug Sal....

hey carol sorry ur hurtin' it suks when u are so tired and and then wake up due to a flare or hotspots omfg them hotspots are killers i'm lucky no smack talk here i have a very understandin' man he at times is all that keeps me sane i will brb gotta go get my frozen icepack.i think i hate hotspots worse then a full flare but thats me.... now back to u luv i'm sorry ur friends didn't say nothin' ik i can't answer for them but maybe they dk what to say do u know what i mean .....plz try to get as much rest as u can .... gentle hugs comin' ur way sandy

this reply is to deb2416 i'm not tryin' to sound like a mean bitch or be rude k but you said due to additication u don't do pain killers , my sis was on that her doc told her it helps some ppl wit pain and he also said she could get additied to trazadone also just sayin'

Carolina, sorry took me a bit to reply, am deep in a funk so hard to be chipper....But if not for DS, I bet none of us would survive too long without needing a nice padded room. Tho maybe I would hurt less if Ai stopped bumping into things, LOL!

I am up in Virginia, I think it is flare season in these parts, too....Hope you feel better sooner rather than later!

I have the same problem with my hips... I did buy some joint flex.. it helped a bit.. smelled like camphor.. tho.. lol.. but does not last long..

then I take a heating pad and get that moist pad it comes with wet.. and put in on my hips.. or take a real hot bath... it horrible I know... think we all can relate....

so many years of this pain.. I get so angry and ugly somedays.... there are not many days of low pain.. not many days where you feel kinda... "good"... sigh...

I have no idea how we all cope... maybe cuz we have to.?... i dunno... lots of tears shed... hope you feel a bit better.. I know most of us dont... big hugs to you tho..:)

it's so hard to carry on when no one understands what you are truly going through. my ma does because she has a lot of the same problems and so does my dad, but my boyfriend doesn't get it and it has basically destroyed our relationship. i need to find someone who isn't so close minded and selfish. it's hard enough to have severe fibro, let alone have the people you love the most not understand it. i always need someone to talk to who understands me and i understand them. let me know if any of you would like to exchange numbers as well so we can text each other how sh*tty we feel and no one will tell us to stop complaining!

I can truly feel your pain. I've 2 hip surgeries, one to replace my hip at 49 and more recently, open heart surgery to replace my failing mitral valve and added a pacemaker 6 months ago. My fibro was bad before the heart surgeries, but out of control after...my body was saying no more surgery! I just recently finished 4 months of grooling physical therapy, but the end result is that I can walk my dogs several days a week. I did my therapy in a warm therapy pool. My body hurts, but not like before. For pain management, my Dr. still lets me use pain killers when I need them. She would rather have me be able to do things than not do things...... like taking a walk! My quality of life has gotten so much better, but when your suffering like you are, it's hard to believe that you'll ever be able to do anything again. Hang in there. Moist heat really helps. I have an aversion to icing the parts of my body that hurt...I live in Alaska and going out of the house in the winter is a challenge but worth it.

Another thing that I do is to take it one day at a time, sometimes, one hour or one minute. Don't dwell on how bad the past fews days, weeks or months have been. Always move forward and try to be as positive as you can be. Take yourself mentally to a place you really want to be and don't be sad that you aren't there now, be happy that you will be there some day....that some day will come if you mentally move forward and do that as much as you can physically. It really worked for me. I'm not where I want to be, but I continue to plug away at it every day.

You have my support!

@Joyful, your comment was very uplifting and I thank you for that. You make it sound so easy! I can think of several places I'd like to be so maybe I'll change it up once in awhile. LOL And I must say...if I lived in Alaska I think I would hibernate for at least 6-8 months of the year. I'd never leave the house! The winters here in the states are bad enough!

My hips still hurt but certainly not as much as they did that early morning. If there had been a bridge near by I'm afraid I mighta jumped! ;)

MissJersey, lets friend each other and go from there. It's always scary to give out personal info on the net. But I too would love to make some more friends...who understand what we're going through.

A big heart felt thank you to each of you for coming to my emotional aide. I was in a bad place and you were there for me. You gave me something to hold on to when I needed it and for that I am grateful!

Love you all!!

I just started a huge flare myself and I am just miserable. I completely understand about not getting support from non fibro friends. I do thankfully have a few great friends that are sympatheic and supportive, and a few that also have fibro themselves which is amazingly helpful. However sometimes i think my other friends get tired of hearing how I really feel, being in pain all the time, and they tune me out a bit >_> Online groups like this have been a godsend for venting and talking to people that know what I'm going through.