Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
My daughter is 25 and suffers from Lupus, Fibro, Cervical cancer, Chronic pain and is Bi polar. I am at a loss as how to help her on a daily basis. I cannot tell you how many times in a day I tell her I'm sorry that I wish i could ease her pain. She is very moody and quite angry at times. I am taking her to U of M next week, but am lost on how to verbally help her. :(
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I'm alive, I'm sleeping like a rock, and for some reason I wanted cherry juice so that seems to be helping. (??? Weirdo that I am.)***Infamous therapies over history:1. The Attic. The madwoman in the attic is a motif in literature going waaaaaay back: the nutty female relative is locked in the attic. (See: Jane Eyre by Charlotte Bronte for a grotesquely racist version of it, and Charlotte Perkins...
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We're all troubled.WSo, to remind ourselves we're not at rock bottom (this is a reverse optimism thing I learned as a kid):We are not living on the island of Krakatoa when the volcano goes boom!Yeah, okay, that sucks.***Toay in 1942, Pierre Laval announced that the way to free France was for Germany to win WW2. Pierre did not win a lot of friends. When the war ended, quite quickly he was tried...
Hoping you have a successful visit to U of M and that she can get cancer free. Then you can work on the other stuff.
Sorry I am not much help. But I am thinking of you.
I am all those same things your daughter has and more. (include Hashimotos, Sjogrens, Arthritis,Stenosis, etc. etc. to my list) I did not receive a DX until I was in my early 50's, on most things, but I had these problems long before.
I get so down and depressed and feel so alone at times and I think if only someone really tried to see what I'm going through and really asked what I am feeling, I think I would do so much better. I have a family and they love me, but they have no idea about the pain and depression I experience. I keep it from them (mostly) because people have there own lives and problems and don't really know or care to understand what others are going through.
Maybe your daughter feels like you can't understand, and you probably can't without having to live this way. A person is very, very alone with constant pain and figuring out how or even if they want to spend their lives living this way.
All I can advise, is to sit down with your daughter and really ask her to talk about how her pain feels, what hurts and let her express out loud what she is feeling. I think that might help her. I think it would help me, but only if someone really cared or was really interested in finding out.
And it sounds like you might be that person for your daughter.
Best of luck to you and your daughter. Have a great day.
I will say that my mother had to rip me a new one about me being down all the time. Some days I want to be listened to, some days I could use the "shut the hell up and. Quit whining" speech. Lol.
All you can do is ask her honestly.
The thing is that it is not healthy for the person suffering or the family to just let this go on. If I'm having a pity party, I put a limit on it. But, that comes after years of dealing with this. I'd suggest that you consider getting some Cognitive Behavioral Therapy for both of you. It will give you/her tools to cope with this situation. Many of us see someone for extra support. You can't be totally consumed by this situation or you'll be no good to anyone including yourself.
That is the best I can offer at the moment. I hope that my comments are helpful to you. Take care.