Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hello everyone,
Our son who is 18 just left for work. It was 3:20 p.m. here. He had stayed the night at a friend's house and had just come home to shower and get ready for work. He seemed upset about something so I finally got it out of him that he is upset that his dad and I are still in our pj's and it is so late in the day. We had gone out last night and didn't get to bed until 2:00 am and I couldn't sleep until 5:00 am because the waiter accidentally gave me caffeinated coffee. So, I didn't get up until noon today. We had planned to be lazy today, I read and play on the computer while hubby reads book I got him for Christmas.
A lot of weekends we don't get showered and ready to get out of the house until 2:30 or so, but wind up staying up until 1:00 am or so. I actually feel better in the afternoon and night time. Mornings are my worst. I am sick and in my pj's 3 days a week because of Methotrexate shots. But, I make myself get up by 10 am every day and I have a cup of coffee and take my pills and eat a cookie or piece of fruit. Then around noon I fix a bowl of cereal and take more pills. Well, he said it bothers him that it seems like a routine now that I am just eating my cereal when he comes home for lunch.
My hubby enjoys sleeping in on the weekend. He has a very stressful job during the week and also has to do things I cannot do and takes care of me. So, he is tired by the time the weekend rolls around. He also suffers from low energy levels. So, he will get up on weekend mornings and not get into the shower until early afternoon on Saturday and we both may not shower on Sundays and just stay in our pj's. We always kept Sundays as family day. Our son is the only child left, so we don't have family day as often because he has other plans with friends or has to work.
Do any of you stay in your pj's during the week or on the weekends? What about your spouses? I know a lot of people with these illnesses cannot even get out of bed at all. There are many days that I force myself out. I can only take a shower 3, maybe 4, times a week now. It is just too painful and tiring. If it weren't for my kids, I doubt I would get dressed as often or go out as often as I do now. I force myself to get out of the house on the weekend (some weekends aren't so bad). It is good for me to feel "normal." Even if we just go out to the movie and dinner.
This really is getting to me today. I wish I had my energy back, my old self back, so I could run around and do stuff like I used to and not be a concern to my son.
Is there really something wrong to want to laze around on a weekend anyway? LOL!
Thanks for reading this, I know it is a little lengthy. Any advise or comments would be great!
Hugs,
Sheri
Our son who is 18 just left for work. It was 3:20 p.m. here. He had stayed the night at a friend's house and had just come home to shower and get ready for work. He seemed upset about something so I finally got it out of him that he is upset that his dad and I are still in our pj's and it is so late in the day. We had gone out last night and didn't get to bed until 2:00 am and I couldn't sleep until 5:00 am because the waiter accidentally gave me caffeinated coffee. So, I didn't get up until noon today. We had planned to be lazy today, I read and play on the computer while hubby reads book I got him for Christmas.
A lot of weekends we don't get showered and ready to get out of the house until 2:30 or so, but wind up staying up until 1:00 am or so. I actually feel better in the afternoon and night time. Mornings are my worst. I am sick and in my pj's 3 days a week because of Methotrexate shots. But, I make myself get up by 10 am every day and I have a cup of coffee and take my pills and eat a cookie or piece of fruit. Then around noon I fix a bowl of cereal and take more pills. Well, he said it bothers him that it seems like a routine now that I am just eating my cereal when he comes home for lunch.
My hubby enjoys sleeping in on the weekend. He has a very stressful job during the week and also has to do things I cannot do and takes care of me. So, he is tired by the time the weekend rolls around. He also suffers from low energy levels. So, he will get up on weekend mornings and not get into the shower until early afternoon on Saturday and we both may not shower on Sundays and just stay in our pj's. We always kept Sundays as family day. Our son is the only child left, so we don't have family day as often because he has other plans with friends or has to work.
Do any of you stay in your pj's during the week or on the weekends? What about your spouses? I know a lot of people with these illnesses cannot even get out of bed at all. There are many days that I force myself out. I can only take a shower 3, maybe 4, times a week now. It is just too painful and tiring. If it weren't for my kids, I doubt I would get dressed as often or go out as often as I do now. I force myself to get out of the house on the weekend (some weekends aren't so bad). It is good for me to feel "normal." Even if we just go out to the movie and dinner.
This really is getting to me today. I wish I had my energy back, my old self back, so I could run around and do stuff like I used to and not be a concern to my son.
Is there really something wrong to want to laze around on a weekend anyway? LOL!
Thanks for reading this, I know it is a little lengthy. Any advise or comments would be great!
Hugs,
Sheri
I would just reassure him that everything is ok and that you just wanted to laze around, or explain it to him just like you did to us, cause you worded it perfect. Good luck dear.
On weekends, we live in our pjs unless we need to go out for some reason. Before got sick, I used to hate staying in all weekend, I didn't sleep as much as hubby, and I found it frustrating. Now, I do it too and usually sleep more than he does.
I think we all need to do what our bodies ask sometimes. Is it possible your son is distressed about seeing his parents aging or so tired?
The thing is.. the weekends are no different than the non-weekends for me..... it doesn't have one iota to do with how I feel. That sucks. I want my energy back too. I'm sick to death of it. I've hunted down every new thing someone's told me is supposed to help.
Where's the friggin answer and why is it hiding from me?
He is just young and can't understand what it is like to have a chronic illness. Just explain and leave it at that. Time will take care of his level of understanding.
Hugs from a fellow pajama queen. :)
Like you I only have an 18yr old son left at home and he never says anything about me and the PJs. However there is the occasion that he will mention things that happen at his friends homes and ask why we don't do things the same way. He is often not upset about it but curious I think.
At this point in my life if I choose to stay in jammies all day I do. LOL! I don't even try to justify it to those that question it. It feels good and I want to feel good!
but I am like you I don't really feel good till afternoon evening time. my family now lets me sleep in without to much trouble. unfortunately my husband is an early bird but is much more patience now and lets me sleep till 11or 12 if I'm really bad! hugzz