Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hi, my aunt has fibromyalgia and I have many of the symptoms. My docs aren't very good at connecting the dots so i wondered if you could tell me if my symptoms sounds like fibro
I have
Pain in my neck which causes headaches (especially across one side)
Acid reflux
ibs
pain in my stomach and sides for no reason
tingling in my hands
sensitive to light - especially the sun
sometimes the telly and other sounds seem so loud that they hurt my ears
sometimes my eyes sort of unfocus
trouble waking up in the morning like I am in a deep deep sleep and then feeling really tired. Even when I go to bed early I still feel tired
I often get tired in the afternoon, say after lunch, I could sleep at my desk
Sensitive skin - like when I am playfighting with my fiance, if he grabs my sides, it feels like it burns
painful periods
sometimes i get pain in my lower back that only goes if I lay down. This is usually when I have my period
Feeling sick in the morning. Although I have always put this down to my digestive problems
irritability
depression and anxiety (though I have had ocd since I was 15 and the other systems started years later)
sometimes I struggle to get the right word out even though I know what I want to say
irritable bladder (i often feel like i still need to go even when I have just been)
pain during sex
I know that is a long list! my docs aren't good at seeing if there is a connection.
Jen xx
I have
Pain in my neck which causes headaches (especially across one side)
Acid reflux
ibs
pain in my stomach and sides for no reason
tingling in my hands
sensitive to light - especially the sun
sometimes the telly and other sounds seem so loud that they hurt my ears
sometimes my eyes sort of unfocus
trouble waking up in the morning like I am in a deep deep sleep and then feeling really tired. Even when I go to bed early I still feel tired
I often get tired in the afternoon, say after lunch, I could sleep at my desk
Sensitive skin - like when I am playfighting with my fiance, if he grabs my sides, it feels like it burns
painful periods
sometimes i get pain in my lower back that only goes if I lay down. This is usually when I have my period
Feeling sick in the morning. Although I have always put this down to my digestive problems
irritability
depression and anxiety (though I have had ocd since I was 15 and the other systems started years later)
sometimes I struggle to get the right word out even though I know what I want to say
irritable bladder (i often feel like i still need to go even when I have just been)
pain during sex
I know that is a long list! my docs aren't good at seeing if there is a connection.
Jen xx
There is a list of FM Symptoms that you could look at here.
http://chronicfatigue.about.com/b/2008/02/19/is-this-part-of-fibromyalgia-or-something-else.htm
Trouble is with seeing a rhuematologist is I would have to get the GP to refer me first and I am not sure how much my gp understands things like FM!
There are too many people diagnosing themselves and that is very dangerous. You could have Lupus, MS, RA, Lyme, Celiac, MPS; any number of treatable things can mimic FM.
Please ask you doctor to refer you to a Rhuemy. You can get FM at any age.
I was lucky in that I was diagnosed after about 3 months of tests by a top of the line Rhuematologist in my area. But I had never even heard of Fibromyalgia and had to even ask him to spell it so I could look it up. There was very little information on the internet then - there barely was an internet in 1997. Nobody I knew had heard of it either.
FMS has tender points--Do you have pain radiationg down from tender points on your body? for example, radiating down from your shoulders, hips, or buttom of butt area?
CFS has post exertional maliase and dysautonomia
PEM-people feel severely fatigued and flu like after exercise.
Dysautonomia--Blood vessels don't contract and dialate right so when a person stands up or sits up, the blood falls to their feet and they get dizzy and nauseous.