Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hi all
I know most of you have had this issue and so I was wondering if any one has some ideas we may not have tried yet...
My daughter has struggled with sleeping properly for years. Now, however the fibro has decided to take it to a new level! She cannot sleep at all during the night and then sleeps all day.
After four days of being ably to handle the pain without painkillers last week, she was back on them from Thursday and this morning I had to give her a much stronger one because of near migraine headache and very painful muscles and joints. As best as she is ably to describe it, it seems to be a general all over pain rating about 9. Over the last while her sleep has been getting more out of sync with the day-night cycle of things. The last few nights she has not been able to get to sleep until 6 or 7 in the morning. Her room is dark and warm enough. Her bed is comfy, she has a special mattress and a heating pad, she has a onesie for sleeping in so there are no seams to trouble her, she never drinks caffeine, she is taking calcium and magnesium supplements along with a good multi vitamin, extra vit B5 and vit E, we have just run out of the omega oils she has been taking for two months and will be getting more on pay day. She is on a seratonin booster, (Talomil). She has been having hot baths with muscle-relaxing bubble baths, there is lavender essential oil on the dog that sleeps in her room. (I put it on the dog because then her body heat releases it through the night and having it any closer to my daughter gives her more of a headache - she is very sensitive to smells at the moment).
I am out of ideas!
I know most of you have had this issue and so I was wondering if any one has some ideas we may not have tried yet...
My daughter has struggled with sleeping properly for years. Now, however the fibro has decided to take it to a new level! She cannot sleep at all during the night and then sleeps all day.
After four days of being ably to handle the pain without painkillers last week, she was back on them from Thursday and this morning I had to give her a much stronger one because of near migraine headache and very painful muscles and joints. As best as she is ably to describe it, it seems to be a general all over pain rating about 9. Over the last while her sleep has been getting more out of sync with the day-night cycle of things. The last few nights she has not been able to get to sleep until 6 or 7 in the morning. Her room is dark and warm enough. Her bed is comfy, she has a special mattress and a heating pad, she has a onesie for sleeping in so there are no seams to trouble her, she never drinks caffeine, she is taking calcium and magnesium supplements along with a good multi vitamin, extra vit B5 and vit E, we have just run out of the omega oils she has been taking for two months and will be getting more on pay day. She is on a seratonin booster, (Talomil). She has been having hot baths with muscle-relaxing bubble baths, there is lavender essential oil on the dog that sleeps in her room. (I put it on the dog because then her body heat releases it through the night and having it any closer to my daughter gives her more of a headache - she is very sensitive to smells at the moment).
I am out of ideas!
Messed up all the time :/
Aunt Tammie - What is a light box and how does it work?
Fibrosucks - No pain clinic that I have found yet anywhere near us, I will keep looking and asking though.