Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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fibrosucks 05/15/2013

The past few months I have had major issues with burning feet and tingling and pain in my lower legs. Did some research and found out about CIDP which describes me to a T. It too is autoimmune in origin. I wonder how many autoimmune things a person can have at once? I already have fibro and chronic fatigue! What the hell else can go wrong! Am planning to go to Penn State to get this checked out. Do any of you have the burning feet and tingling burning lower legs? I am miserable!

deleted_user 05/15/2013

I have the tingling and weird pain in my feet...Fibro.....don't u just hate it....

fibrosucks 05/15/2013

Check out CIDP aka chronic inflammatory demyelinating polyneuropathy and see if any of these symptoms ring a bell. Pretty much fits me.

MAGICpill 05/15/2013

I found this a Mayo Clinic:

Diabetes is by far the most common cause of neuropathy in the legs. Many other conditions can cause neuropathy with a burning sensation in the feet:
Chronic kidney disease (uremia)
Vitamin deficiency (vitamin B12 and occasionally vitamin B6)
Alcohol abuse
Low thyroid hormone levels (hypothyroidism)
Lyme disease
HIV/AIDS
Amyloid polyneuropathy
Drug side effects, including chemotherapy drugs, vitamin B6 overdose, HIV medicines, isoniazid, amiodarone, metformin, and others
Heavy metal poisoning (lead, mercury, arsenic)
Vasculitis (inflammation of blood vessels)
Sarcoidosis
Guillain-Barre syndrome
Arterial disease
Edema or fluid retention
Hypertension

fibrosucks 05/15/2013

Not diabetic or hypertensive, no thyroid issues. Nothing in Magic's post is an issue with me :/ hoping by going to the Neuroscience center an answer might be found. I hate not knowing why!!!!

Emily710 05/15/2013

And I suggest that you supplement your B vitamins unless they are in the upper half of the range; I.e. unless they are almost high. The reason is that it seems that our bodies have a difficult time using the vitamins even if the levels in the blood might be ok for other people.

lalab707 05/15/2013

I take double the dose of sublingual B12 and it helps me......basically two 2500 mcg pills. I was sleeping with my feet out of the covers as they were burning up while the rest of my body was cold.

Abotsd 05/15/2013

I do use Voltaren gel on my feet. It helps with the warm pains. Still, it is something to check out with a dr., maybe a podiatrist?

naturegirl65 05/16/2013

Yes I have hot tingly feet. And yeah it's no fun. I totally agree and can relate. And I'm sorry you have it.
It's been a problem for me for months.
I did get the EMG nerve conduction test done and I have mild peripheral neuropathy. Doc says it's mild but boy it drives me nuts. Hot feet I'm always trying to cool down.
However I started a homeopathic medicine a few days ago called Nervefix which I think is helping because today I noticed that my feet feel cooler and less tingly which is definitely an improvement.
I haven't had my vitamin b 12 level checked but I've been taking a good B complex and sublingual b for a long while so I don't know if that is my problem.
And my doc was not much help. I asked what is causing it and he couldn't give me a straight answer he said it was Possibly to do with the RA I had for years but I am in remission from RA for 5 yrs so how can thay be and the hot tingly feet problem only started about a year or so ago. I think it's linked to the knee joint replacement surgery I had but he said no it's not that.

So yeah I have been trying to find ways to help symptoms. I use a herbal cooling spray to try and cool them down which is a temporary few seconds relief but this NERVEFIX remedy is looking very promising for me. If you are interested Look online, it's available from plenty of places and you can read reviews on it.

Obviously you find out first what's going on and I hope you get answers from the doctor.

deleted_user 05/16/2013

I did not have this until after my last flare up, which lasted for over a month. I am now having it, exactly how you describe it, burning and tingling in my feet and lower legs, At first it just hurt to walk, but in the last month it has begun to hurt while just lying in bed or the couch. What do you guys do for this? I will check out this CIDP, but I am sure the doctors will all say it has to do with my arthritis in my spine. Which I don't think is the cause since I have had that diagnosis for over ten years and this pain just recently started after my last flare up.

fibrosucks 05/16/2013

Nature girl, I too had an EMG study done a few years ago which revealed mild peripheral neuropathy. That neurologist, however, did not think that explained the symptoms I have.

Jonsparky 05/17/2013

Classic PN symptoms, I have had burning feet for 27 years. The Neurologist diagnosed it as Hereditary Neurapathy. If you can find away to reverse it, better sooner then later! I also get the same systems in my hands, it is called the stocking and glove syndrome.
Get your B12 checked out, as was previously mentioned.
Good luck!

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