Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Muscles & Bones
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Burning Butt

deleted_user
deleted_user
My butts on fire ,it spreads to the left thigh ,I feel like I am cooking a giant ham attached to my hip ,ice is getting old for releiving some of the heat which is deep inside that cant be fealt from the outside .I have been trying to relate it to my recent de-ironing treatments by phelbtomys for hemochromatosis ,which is iron overload but now after being drained of around 30 pints of blood in less than a year this butt burning is even baffling my hemotologest along with my back doc that just gave me cortizone treatment with no releif .My searches keep bringing me back to this group any help or suggestions would be greatly appreciated ,I lost my faith in docs after suffering from hemochromatosis and being mis-diagnosed for many years which near bouts killed me before finally caught .
deleted_user
deleted_user
Welcome to my world. Unfortunately it's not a wonderful place to be. Nerve pain sucks! I don't know anything that makes it go away either. There are some meds that can help. Use caution with these meds as they can be a real miracle for some people and really mess up others. Usually looking at drugs like Lyrica, Gabapentin, or anti-seizure meds. Things that work on brain chemistry. Good luck and I hope you find some relief.
deleted_user
deleted_user
I bet your problem is myofascial pain where the muscles get knots in them that refer pain elsewhere. The knots, known as trigger points have to be broken up for the pain to subside. Fortunately, you can learn to do trigger point massage on yourself with a bit of time and effort.

I've had the pain in my butt that wraps around my thigh and doesn't let up for days if not weeks on end. It was myofascial pain and now is controllable with trigger point massage.

Check out triggerpointbook.com along with triggerpoints.net.

I wrote an extensive post on how I do trigger point massage for the Fibro Puzzle group. Here's a link to it:

http://www.dailystrength.org/groups/the-fibro-puzzle/discussions/messages/9854333
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