Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Hi all! So I have been MIA a bit because I received a diagnosis that has slowed me down some. After seeing a rheumatologist and the test finding " nothing" she told me that my fibro had gotten as bad as it can get and I should file for disability. But she basically refused to help me. So I went to see the NP at my GP. Turns out I was the second fibro patient that this rheumatology group refused to help. But they are the group that this hospital system uses to treat fibromyalgia! My NP was like, " I wonder how many others got the same treatment and never told me??" So she started me on a different drug protocol. Instead of taking one drug I take small doses of two right before bed because the one makes me sleepy. It seems to be helping a lot!
Anyway the rheumatologist also told me I needed to see a podiatrist because I needed insoles. Podiatrist looks at my swollen as hell ankles. Looks at my MRI. Shows me the MRI and says, " Well yes, you do have plantar fasciitis. So do more than 50 percent of people over the age of 40. I can tell you the insoles to buy off Amazon to help. They are 20 bucks a pair. But that's not your real problem. Your real problem is the deep tear in your left Achilles tendon and the tendonosis in both legs. Looking at your MRI you've had terrible leg pain for years, haven't you?"
Yes. And $20000 in out of pocket medical fees because they kept running tests for MS. And I have been limping so bad for a year and a half that my Neurologist told me to use a cane.
So the tendon will heal hopefully on its own, otherwise I have to get surgery. The tendonosis will flare and I have to modify behavior accordingly to reduce that. I am looking into getting a recumbent exercise bike for the home gym since I am not cleared to use the elliptical trainer for a while.
So yeah, I have fibro. But I live a pretty active life and work ony feet so it's not always fibro!
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I'm alive, I'm sleeping like a rock, and for some reason I wanted cherry juice so that seems to be helping. (??? Weirdo that I am.)***Infamous therapies over history:1. The Attic. The madwoman in the attic is a motif in literature going waaaaaay back: the nutty female relative is locked in the attic. (See: Jane Eyre by Charlotte Bronte for a grotesquely racist version of it, and Charlotte Perkins...
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Welcome to the Perseid meteor showers, the "biggies" usually every year. (The Leonids beat 'em one year IMHO).AND today much of the northern hemisphere will see 5 to 99% solar eclipse. How cool is that? Your best bet is to be in the UK or norhtern Spain, where totality is excellent before sundown. Me, I'll get a super duper tiny itty bitty slice of it, so little that it won't be noticeable. New...
I'm glad you at least now know SOMEthiNG, and have an action plan. I have tendonosis in my right arm sicne I broke it and it's painful but you can get around it. As for Achiles, that usually does require surgery,but it's generally really successful. HUGS.