Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Appt with Pain Management so frustrating

kitkennedy
kitkennedy
Has anyone had problems with their pain management clinics? I was referred after my surgery for c-567 and T-1 well, I met the doctor on the first visit and he was great! Then to find out he was leaving the practice. I have had alot of problems after my surgery and found out that this particular clinic you see mainly nurse practicineers oh, let me not forget it is a different one each time and can I say they have no fricken clue as to what is going on! I am so frustrated right now it feels like they do not listen nor read what the MA put in the computer. No help what so ever I am in Dayton ohio does anyone know of a good pm doctor that treats pain, Fibro,ptsd or how bout a doc that cares and will listen to what is going on! They have put my poor body through somewhere it should not have been. Why are they so afraid to change your meds when you are telling them they are not working!!!!!! Then try to change things that are working! UGH! All I want is for the (doc) not one of 8 NP's no offense if there are any out there but, having several people picking your file up just does not work! Paitent care has gone out the window in Ohio!!!!!
LeoX3
LeoX3
I used to drive home to Penna to get my FM treatment! (I lived NW of Columbus. Might as well ahve been the dark side of the moon for health care options.) Wish I had more help besides sharing the frustration.... I avoid the pain clinic here b/c it's so strict that they won't take you if you have darn near anything.... or if you're on certain other meds....

Hang in there, vent away, and good luck finding something better!
k83317
k83317
I spent months waiting to see a rheumatologist that my pm dtr said I had to see for him to treat me & then when I went back he said there was nothing he could do. I have a appt Friday with a new pm clinic that I've been waiting for over a month for. Good luck.
deleted_user
deleted_user
I have been with my pain clinic for over a year but just recently I have been seeing the nurse practitioner a lot, and unfortunately, the NP doesn't believe in FM!!! I am seeing them for occipital neurologia but I feel like I am not getting full care when I see her - my doctor didn't even know about my diagnosis for 3 months. I have recently been seeing him again once he realized how severe my problems are - I think it depends on what I say my pain level is when I go in. It's very frustrating though!! I have thought about saying something to the office manager about not wanting to see the NP because she didn't believe in fibro when my doctor does - I figured that was a good enough reason.
deleted_user
deleted_user
Hard times with docs here in N GA. I have been through several.

The fed gov have scared docs to the point that many just have ban on all pain meds. I wish you the best in your search, they're still some docs who care out there.
fibrohyg
fibrohyg
I love in Ohio, and if I was closer to Akron, Canton, I would go to Dr. Mark Pelligrino. He is one of the early and foremost researchers on the condition, and has written several excellent books. He has the condition himself. Fibrohyg
deleted_user
deleted_user
Oh wow, to find a doc with fibro would be **amazing!!**
kitkennedy
kitkennedy
So glad to hear I am not alone in this! But it is so sad what we have to go thru! My day consists of getting up 5:45 take my meds get my coffee sit,sit,sit then to closet sit again, pick my clothes sit, shower oh, the pain of water hitting get out sit again and cry cat comes in to show love, get dressed work all day starting about 1:00 go down hill push my way til 5 go home lay down take meds and sleep till 7:00 then go to bed all to start over again! Ok who wants my life don't be jealous... LOL You have to have humor in this because half the time I forget what I am doin in mid stream!