Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I am sorry that you are bedridden. Do not dispair. I wish you some relief soon.
I have a full time job..being "BEDRIDDEN"
i would love to be able to work! but takes me hrs just to get out of bed! slide one foot & arm to edge of bed,, 10mins. later flip the rest of my body to try & sit up ect. ect.
even the cat & dog know my routen in the house
i have pj days 5 out of 7 days iam all by myself, so that makes a difference I don't have to get up for anyone, except to let the dog out three X aday! when i get up to to my routin!
the days i have doc appointments i try to schedule all on the same day cause iam so exhausted just getting dressed & then going out iam "BEDRIDDEN" for days most of the time sleeping! I always think i could die in this house & no one would know!
Im signed up w/a program thru Phyic Doc for visiting nurse & a avocate.... so she calls & try to get me out once awk! They have help me get alot of services! house cleaner/yard & bus comes & picks me up for anywhere i want to go!
I do force myself to get up every other week cause i sit for my Grand D she is 5yrs, she wants to do everything! I do have her trained to hop in bed w/me i have a drawer on both side of bed w/emergency health snack, verners & juices! her side has extra surprizes ea week! crayons books, toys ect.
when she goes to her dads ..I just run down like someone turned me off! crawling to the bath room, i'm "BEDRIDDEN" for days!
I missed the great weather Michigan had last week up to 80 & i could not get out of bed just lied here & looked out my window in bed!!!
Even tho it is a tearible sickness!...
it so good to hear i'm not alone or weird or "CRAZY"..
I also feel the certain Meds make it worse... I was on Somas for 6mo & was getting worse! so last week i stopped taking them & some of my crippling pain hands stopped! & i have not had any withdrawls.
I hear alot of you talking about "REMISSION" i have not had a break in 8yrs not!
I have gained alot of weight but then lost it, but it back again when gave me cmybolta & Lyrica & zyprexa! to many other drugs to list! Everything everyone else is taking!