Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
my so called friend that picked me up from ER sunday just yelled at me. i've ben awake a sum total of 6 hours in 3 days, can't eat or drink without wretching and she just told me how mad she was that i called and woke her up at 6 am to take me home from hospital. the hospital does not allow you to take an uber if they give you pain meds....last year i had to pay her ahole husband 90 to take me home. they were incredibly rude....i didn't authorize the nurse to call my emergency contact....apparently it says emergency when the phone rings....thanks nurse for that. they wanted the bed and again, at shift change....always when they want to kick out and finish ppwk.
i was still throwing up in the bathroom when they were writing up my ppwk but because white blood cells ok, they wanted me out.
SO, when i called after sleeping 3 days straight, this so called friend said, take me off your emergency contact list. i still have a stiff neck from being upset by the phone call!!!!!!!!!!!!
this is where i go to my very dark place and just want to check out permanently...noone wants to be bothered by me anymore. noone wants to hear about me being sick anymore. i know there is some kind of problem going on, but not one doctor or nurse cares enough to do anything about it....i am not worth it. i am not a celebrity or a model or have kids or parents that care about me....noone wants to be bothered, period
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Years ago, I won a mirrored armoire from my job. It's in my bedroom but I rarely stand in front of it. Yesterday, I had to have a dexascan done so I had to change into a gown. There was a full length mirror in the changing room. I'm aware that I gained 5 to 7 pounds over the last year from cheating on Keto but I didn't know what it looked like. It was a reality check.
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You have us!! If you need to talk feel free to message me.
I'm so sorry to hear about that, and I can understand the dark places it leads you. I lost all my friends as well, and at 28 I only have contact with my partner, and every few weeks my parents.
Venting always allowed here, and I hope you'll find something to do today that treats you well.
Just know that your daily strength family cares about you and that we are here for you. Vent away as much as you need to. This is a support group and we are here to offer support.
Praying that you feel better real soon.
thanks for listening to me vent.....i really need it while i am still very ill and do not know why
i did get a reply back via email from my internist, worthless that she is, come in to office she says...well wouldn't i have done that if i could get out of bed?! i think i am having bile acid gastritis from my surgery. gastritis was dx from last doc who actually stood there long enough to answer q's. my counselor is trying to get me to "take responsibility" for my own healthcare since it is just me; however, she does not understand how hard it is when you are in a big city and they are incentivized to get people treated and released very quickly.
8 days and counting to new gastro doc. i think i will stand on the exam bed if he doesn't listen to me!!
I am down to one true friend, but between her job and her 3 daughters , I basically need an appt just to talk to her on the phone. And she makes it clear not to call during the week , just on weekends because she doesnt work weekends.
I have a few people to take me to Dr appts / tests etc , but I pay them . We are friendly but not exactly friends.
I hope you can get some answers and appropriate treatment soon , so you will feel better. So sorry for what you are going through.
Does everybody have their breaking point? If someone says they are there for you and decide later it's too much and become conditional later...what does a person make of this?
I would expect friends to be conditional...I've heard it said that if you have one good friend in life, you are very lucky. ....but I've never had one good friend that would do anything for me...not even a man, who granted, in the past, when I was young and cute....would do anything for me....but I was young and cute then. I seem to have this lifelong relationship with people who say they will be there for me, but aren't or are very conditional about their treatment of me.
I understand people get worn out in giving up their lives to help, When is someone EVER there for you unconditionally? I suppose only if you pay them in my mind
I hope you find a doctor that is willing to help you and get to the bottom of it.