Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
hello all
this is my first post so please excuse any mishaps,
well i had a pulmonary emboloism 3 years ago which has caused no end of problems for me since the attack ive been constantly sore hugely fatigued and my bones hurt like hell with a constant numbness around my eyes and forehead with gout attacks affecting my knees and elbows and monday was diagnosed with fibromyalgia. Im a born fighter and before the PE was fit very active and employed im now none of those things and not threw lack of trying i just feel like im constantly hitting a brick wall and getting back up is harder and harder.. i know this is a big rant on my behalf as all of u on this site are suffering with the same illness but to be honest i really didnt where else to vent my thoughts and feelings so rant over and hello everyone.
this is my first post so please excuse any mishaps,
well i had a pulmonary emboloism 3 years ago which has caused no end of problems for me since the attack ive been constantly sore hugely fatigued and my bones hurt like hell with a constant numbness around my eyes and forehead with gout attacks affecting my knees and elbows and monday was diagnosed with fibromyalgia. Im a born fighter and before the PE was fit very active and employed im now none of those things and not threw lack of trying i just feel like im constantly hitting a brick wall and getting back up is harder and harder.. i know this is a big rant on my behalf as all of u on this site are suffering with the same illness but to be honest i really didnt where else to vent my thoughts and feelings so rant over and hello everyone.
You're not alone. I was always athletic and even managed to stay fit with FM most of the time since the dx, but the juggling to find "What Works" is so highly individual and also tends to vary depending on other issues in the background (my epilepsy complicates *everything*).... so if you have questions or want to read up on treatments (there's a separate subgroup, but we mostly hang out on the main board), browse around, ask away.
And feel free to drop in on check-in to see how othres are, let us know ho you are, etc., it's a FM board tradition. :-)
I have found great support on this board since my official dx in 2011. Mostly I have enjoyed really being heard and literally feeling the pain like we do yours. It is so hard some days, to try and get up to fight another day. But, you have us here to support you and cheer you on. So, come on!
Take good care, JP
Venting just part of nature, don't ever apologize for it. I think of venting like I do volcanoes or earthquakes, heck even little geysers do it. When enough pressure builds up, you just gotta let it go.
I can't say I was on the athletic side (I was when I was younger, always playing several sports and I carried them on into bar leagues too). But I was the kind of person who always worked 2-3 jobs. Always on the go, before fibro set in.
For me, I guess the best analogy I have for fibro is this. It's like the weather. And as it's a part of the world we live in, we have to plan for it.
There are great days (sunny, perfect temp, etc) and there are stormy days. Sometimes the skies open up and dump a load of junk on your doorstep and other days you just scrape by w/out any impact.
But like the weather and always planning your life with it, we have to do the same thing with Fibro. We have to plan for good days and bad days. We are always planning, but in reality it's coping.
I'm glad you found the group. I came here back in 2008 and it's felt like home to me. And I've done my fair share of venting and learning along the way. I can definitely say this, w/out this group, I wouldn't be where I am at today.
BTW, bricks, though they seem strong, all they are is just a bunch of dirt put together. They are not as strong as one thinks. And if you think of that "venting" you needed to do earlier? Well blowing off steam is a bricks worst enemy. Through pressure and water, it can erode any brick out there. So, if you think about it, by coming here to vent, you're going to break down that wall so you don't keep crashing against it!
Wonderbaby said it so well. The analogies about the weather, coping and also how to break down a brick wall were amazing and right on target. Thank you wonderbaby.
You might want to look at the symptoms in the website. I started taking aspirin on my own which has been helping with headaches, brain fog and neuropathic pain.
The PE might be clue to what is causing your other problems.
Golfing no more or walking my legs hurt so bad right now I can hardly walk my husbands out golfing and I sit at home , last night I pull myself together to go to my granddaughter's recital and I think that's why I'm in so much pain but sitting there for a couple hours , we have to just pace ourselves and take advantage of any good time we have I know I can't do anything longer than 15 minutes and I have to rest and the pain moves around in the migraines come so I do what I can were here for you were here to support each other so come anytime you like or ask any questions you like you're not alone ,hugs Shirley
such lovely people and im really glad i found this FM board