Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
I haven't post in a while. At least I don't think I have, so I'm about to make up for it.
It's kinda funny, for a couple of weeks I have got on here and read post and would want to post but not had it in me to do it. I have picked up from some of you that you do the same thing from time to time. Then I have a few days where thats all I want to do.
Well here goes. Afew weeks back,maybe months, my stove went out. It popped several times and smoked up smelling like rubber burning. After loosing my home to fire 5 years ago, I don't want to fix it. For years now my family has worked on a Christmas Tree Farm. The owners of the farm has bought me a stove.
Now I know we have to except help from others but I don't do that very well.
Also, when he was here yesterday I asked him was I going to be allowed to work this year. He has a pumpkin thing in Oct. and I didn't get to work this year. He reminded me I told him he wouldn't be able to depend on me. I told him I could run the taste table. Today I have been reminded I have days I can't do much at all and the colder it gets the worse it will get. My husband is starting when he gets off today and I told him all of this. He was so sweet when I told him I miss working he said when I have a good day step outside and jump into something then I can step in and crash if I need to. The problem with that is it's just not the same.
DAMN this disease!!!
Sorry for the language I just had to scream.
Getting ready for the stove(was suppose to be delivered yesterday)I had alot of cleaning to do and now today my skin doesn't want to be touched. My ankles fill cracked and my hips, well all of you know about hipps.
The skin on my thumb next to my nail is cracked. The tip of my thumb is soooo tender. I have glued it at least 4 times, no help.
My counselor has decided I have not gone through the greeving stage of this ugly illness. I think sometimes I'm still in denial even though I have quit my job and filed for disbility.
I've washed a load of clothes and now I need to muster up the energy to put them in the dryer. I've drank 2 cups of coffee to give me the energy. WRONG,my head says go go go but my body says no no no. I know the caffene was not good for me.
Ok I think I have made up for the past few weeks of not posting. Thanks for reading.Love, TW
PS. My stove comes Mon. because they are getting me a black one and it was out of stock. Friends are heaven sent.
It's kinda funny, for a couple of weeks I have got on here and read post and would want to post but not had it in me to do it. I have picked up from some of you that you do the same thing from time to time. Then I have a few days where thats all I want to do.
Well here goes. Afew weeks back,maybe months, my stove went out. It popped several times and smoked up smelling like rubber burning. After loosing my home to fire 5 years ago, I don't want to fix it. For years now my family has worked on a Christmas Tree Farm. The owners of the farm has bought me a stove.
Now I know we have to except help from others but I don't do that very well.
Also, when he was here yesterday I asked him was I going to be allowed to work this year. He has a pumpkin thing in Oct. and I didn't get to work this year. He reminded me I told him he wouldn't be able to depend on me. I told him I could run the taste table. Today I have been reminded I have days I can't do much at all and the colder it gets the worse it will get. My husband is starting when he gets off today and I told him all of this. He was so sweet when I told him I miss working he said when I have a good day step outside and jump into something then I can step in and crash if I need to. The problem with that is it's just not the same.
DAMN this disease!!!
Sorry for the language I just had to scream.
Getting ready for the stove(was suppose to be delivered yesterday)I had alot of cleaning to do and now today my skin doesn't want to be touched. My ankles fill cracked and my hips, well all of you know about hipps.
The skin on my thumb next to my nail is cracked. The tip of my thumb is soooo tender. I have glued it at least 4 times, no help.
My counselor has decided I have not gone through the greeving stage of this ugly illness. I think sometimes I'm still in denial even though I have quit my job and filed for disbility.
I've washed a load of clothes and now I need to muster up the energy to put them in the dryer. I've drank 2 cups of coffee to give me the energy. WRONG,my head says go go go but my body says no no no. I know the caffene was not good for me.
Ok I think I have made up for the past few weeks of not posting. Thanks for reading.Love, TW
PS. My stove comes Mon. because they are getting me a black one and it was out of stock. Friends are heaven sent.
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
Hugs
Sorry you are hurting.
With this illness I cycle thru alot of the stages I think alot do with a chronic illness no matter how much we may have to accept this illness there are still alot of times we are going to miss are old lives.
Sending Hugs & Prayers that you feel better soon.
Mary
PS it's not about the number of times you post. If you need to vent here, vent here, don't hold it in because that is not good for us.
That is awesome that they are getting you a stove!! One less thing on your mind.
I also have a hard time receiving things from people, it makes me feel awkward. I am so used to being a giver and doing everything for everyone.
However, I realized that by denying something that someone wants to give us, it takes their joy away. Their joy is to give and when we deny that, we hurt them. Think back to a time when you did something nice for someone, what if they said to you, I can't take that or no thanks. How would you feel? So, this is what I do now when someone wants to help me, I put myself in their shoes and realize. I thank them graciously and I make sure that I sent them a beautiful thank you note.
I am sorry that you are in so much pain from doing all that you had to do to get ready for the stove. I hate housework myself!!
I hope that you get some pain relief and that you have a happier evening.
Hugs
http://www.volunteermatch.org/
Also, don't forget that there are ways to volunteer right from home!! You can send out birthday/anniversary/get well cards to people that you know (from church, neighborhood etc). You can also do the same thing but with calling people who may be sick or down in the dumps. Email is another way too send out cards.
Or making a batch of cookies, brownies etc and delivering them to a nursing home floor. Also, asking about people who are in a nursing home who don't get any visitors, the nurse can tell you which ones don't get visitors. You can stop by and help brighten their day, all at your own convenience...once a week etc.
Hugs
All of your responses has given me comfort and I thank each of you. TW
With the volounteering thing there are usually lots to choose from. More than we think actually. Even when it comes to the church if they know about your situation you can always be a spare. If I actually make it to church functions and feel up to it I'll help out in the kitchen. Nobody ever puts me on the spot and asks because they know, but if I can then that means someone else can have a break. Depending on what your interests are some things can be done from home as they are mostly phone committees. If you have a local YWCA that could be a good place to look. They may have a large variety of programs that need different kinds of assistance. For years I was involved with our local training board but even though it's called local it really wasn't. Therefore most of our meetings were held via conference calls. Nobody knew if I was in my jammies on the couch. LOL Some nursing homes need volounteers to help with activities for the residents. Sitting and playing BINGO with them and such. Think about what interests you, what you enjoy and go from there. Most communities need lots of volounteers. It's a good feeling. Good luck.
Hugs