Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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Newbie

jjam86
jjam86
Hello to All. I was just recently diagnosed after about two years of miserable. Like everyone else, I am having trouble finding a good doctor and I have absolutely no one in my life to help me with this. I am an introvert so I don't like talking to people about my feelings and I'm very stubborn and I try very VERY hard to hide my pain and fatigue (which probably does nothing but make things worse because you can't see how bad it is). Anyway, I am just here to hopefully find some people who understand what I am going through and to let you all know that I understand how you feel too. I have been putting on a show for two years now, even when I feel my worst, and I fear that it won't be long until I can't do that anymore. It is so very frustrating not to have anyone in my life who understands.I am such a good actress that 99% of the people in my life have no clue what I"m going through, and now that I've been diagnosed I feel like they wont take me seriously when I tell them. Has anyone experienced this? How do you tell the people closest to you about your "issues"?

Thanks in advance to everyone!!!
Bobbii
Bobbii
I find this forum very helpful as I am too an introvert and I hate to talk about myself. At least here you have support and can complain because we understand. Unless you experience this pain you simply cannot get it. I've been trying to hide how I feel but I'm having more and more symptoms happen when im around people. No hiding then! Part of it is not wanting to seem needy and selfish. I have shared some with select friends. What I've noticed is that people expect me to be getting better and I'm not. It's getting worse. I haven't found exactly how to explain this but I try. But I usually cry when I try and I HATE that.
Fantod
Fantod
Welcome to the group!
twinmomab
twinmomab
I'm new on here too and I think you came to a great place. I'm exactly like you. My family knows about me but even my husband doesn't understand and tells me all the time that I look fine. I finally made him tell his family because it's to the point I can't hide it anymore. I've only gotten worse since I was diagnosed 3 yrs. ago. I hurt everywhere but my feet are the worst. I have been asked many times if i hurt my foot. It took me 3 yrs. to find a good rheumatologist so I wish you much luck!
I hope you have a great day!
fibrolizzy
fibrolizzy
Welcome to the best support group around! You will meet many friends here. We all understand what it's like to suffer in silence, with little support from others. They just don't get it.

I would recommend reading the book, Fibromyalgia for Dummies....very informative in an interesting format. The more you know about this disorder, I think helps. I hope you have a good doctor who is willing to work with you. Treatment is a trial and error journey. But hang in there, because there are meds and combinations of meds that can ease your symptoms. If the newer meds don't work for you, do your research here under treatments and discuss with your doctor some of the older meds. They work just as well or better than the latest thing for fibro many times.

Come here often and vent or ask questions. We are glad to help!

Hugs,
Elizabeth
jjam86
jjam86
Thank you all for your replies and support! I have recently started some new meds that are helping some but they just make me SO sleepy and I didn't need any help with that LOL. Thanks again to everyone! I look forward to getting to know you all and we can get through this together :)
twinmomab
twinmomab
Hopefully the sleepiness goes away or gets better the longer you are on the medicine. Hang in there!
simone71
simone71
i understand 100% :)
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