Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
The physical pain is something I'm actually getting used to. Some days are worse than others. I have new pain in my hip. I'm using heating pads for it -- it helps a little.
I want to talk about something that is beginning to scare me. Up till now, I've chalked it up to being part of fibro-fog, but I need to hear if anyone else can relate to this: I've always had a problem nodding off while watching TV, but what's happening now is that I wake up not knowing I've been asleep. It's like I lose time. When my eyes open it feels like I've just blinked, not that I'm waking up from 15 or 20 minutes spent unconscious. I wouldn't have even noticed this except now it 's happening in front of my partner and she knows when I've fallen asleep because I snore.
I hadn't realized that I was losing time until I saw that I had just watched an entire program and couldn't tell you anything about it. I would erase the show and the next week when they showed "Previously on . . ." I'd notice I hadn't seen any of what happened last week. It's starting to really bother me. It doesn't just happen at night -- it can happen anytime during the day. And it doesn't matter how much sleep I've gotten the night before. I'd blame it on my meds except I've been on the same meds for 5 years, and this only started happening about 4 or 5 months ago.
Before this got so bad, I could tell when I was starting to nod off and I'd just place the TV on 'pause' and when I woke up, I'd continue watching. But now there is no warning. One second I'm watching a show, the next thing I know the show is ending and I BELIEVE I've watched the whole thing because I don't know I've lost time. I'm not aware that I've fallen asleep!
It's beginning to make me think I'm heading into some kind of dementia. And no, I haven't told my doctor about this. I don't consider it a physical problem. I've told my therapist about it, but she's never heard of anything quite like it.
I hope I've explained this well enough. And I'm hoping someone can tell me I'm not losing it!
I want to talk about something that is beginning to scare me. Up till now, I've chalked it up to being part of fibro-fog, but I need to hear if anyone else can relate to this: I've always had a problem nodding off while watching TV, but what's happening now is that I wake up not knowing I've been asleep. It's like I lose time. When my eyes open it feels like I've just blinked, not that I'm waking up from 15 or 20 minutes spent unconscious. I wouldn't have even noticed this except now it 's happening in front of my partner and she knows when I've fallen asleep because I snore.
I hadn't realized that I was losing time until I saw that I had just watched an entire program and couldn't tell you anything about it. I would erase the show and the next week when they showed "Previously on . . ." I'd notice I hadn't seen any of what happened last week. It's starting to really bother me. It doesn't just happen at night -- it can happen anytime during the day. And it doesn't matter how much sleep I've gotten the night before. I'd blame it on my meds except I've been on the same meds for 5 years, and this only started happening about 4 or 5 months ago.
Before this got so bad, I could tell when I was starting to nod off and I'd just place the TV on 'pause' and when I woke up, I'd continue watching. But now there is no warning. One second I'm watching a show, the next thing I know the show is ending and I BELIEVE I've watched the whole thing because I don't know I've lost time. I'm not aware that I've fallen asleep!
It's beginning to make me think I'm heading into some kind of dementia. And no, I haven't told my doctor about this. I don't consider it a physical problem. I've told my therapist about it, but she's never heard of anything quite like it.
I hope I've explained this well enough. And I'm hoping someone can tell me I'm not losing it!
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Well, our drought isn't broken but our gutter is. Got two big storms rigth after each other and, wait for it, a tornado warning.Now, I was already running for my go-bag when I heard thunder. The air felt wrong. The sky was getting a color to the west. Been there, lived that, time to hide.No funnel touched down but the radar indicated rotation, and boy was it visible from the ground. Different...
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My cat is going on trial for crimes against skink-anity. SIX in six weeks. Three this last week alone.The crack is maybe 1/4 inche wide. Maybe. Skink skitters past, her paw shoots out, her claw hooks in, she yanks, and somehow, having defied physics... WHAM. Skink-o-rama.Now, don't get me wrong, it's nice that she's a pesticidal maniac, but OMG. Skinks do no harm. They don't come inside. WTF.So,...
My advice would be to absolutely tell your doctor. This does sound like a physical issue to me, but I'm not a doctor. I'm sorry you're going through this. Please keep us posted, ok? I know you'll find lots of good support here.
Take care,
Elizabeth
IMHO? Time to call a doc. It may be something with meds even after years---I was on epilepsy meds that worked for years, till, of course, they *stopped*---and as we age (sorry to say) our bodies can't handle things the same. So could be meds, could be a lot of things, but asking a doc is the best bet, just to be safe.
Keep us posted and gentle hugs,
Leo
Most urgently get a doc appointment.
I do not believe that lose of time is a fibro thing. Not heard of anyone posting about it on this site.
My son was doing this and did not mention it to me until into it for 3-4 months. Then I saw him experience an episode. As a nurse, myself, I had a doc friend I had worked with for 20 years and called and took him immediately over for an appointment.
What you describe sounds neurological and needs to addressed ASAP. IMHO.
I always say, "If two people tell you you look sick, lie down." To me it's a spiritual expression -- There are ways the universe will let you in on what's best for you. You just have to pay attention. Pardon the pun, but you guys are my 'wake-up call.'
I will make a doctor's appointment and let you know.