Fibromyalgia Support Group

You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

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bluesun 08/09/2009

yesterday i was running errands like a runaway train with no brakes. and i don't know about the rest of you, but when i go and do just ONE errand, i get so exhausted after wards and can't handle much more. this is ONE of the reasons i'm now on SSDI, as i CAN NOT work!!!

so anyways... yesterday after i clean up a failed attempt at putting polish on my toe nails, one of the kittens jumps into my lap and smacks the bottle of polish remover over and splatters it EVERYWHERE!!! SO i clean THAT up (and my self as well as change clothes) and then have our usual family Bible study.

THEN i ran my car up to the auto shop for safety inspection and the brake lights were actin funny. the guy fixes it right then and there. then i had to drive back home, park the car (expired plates), get in the truck and drive all the way to Pearlridge City to get the registration done (for the car) and this was the only place open on Saturdays, and Pearlridge is in the opposite direction of the auto shop. then stopped at bank to pay mortgage. by the time i was on my way home, i was soooo exhausted and i STILL had to drive back to the auto place to get the stickers!!!

Matthew was just switched from welbutrin to effexor so his head was all woosey and he was nauseous. so i told him to get my bro Sonnie out to go back to the auto place with me, since on the way back from the auto place, i STILL have to PICK UP CRATES OF WATER FOR THE COMING HURRICANE!!!! AND I CAN"T LIFT WATER!!! (hence my bro coming)

FINALLY!!!!!! i get home and i'm so out of it i ask my bro to park the car for me after unloading. YOU KNOW WHAT HE SAYS???!!! "SO? i ran 50 errands yesterday at work!" (because his job is a courier driver) i just walked away i was so pissed...

then you know what the SHMUCK says to me later?!?!!?!!!? as i"M TRYING TO REST?!!! he threatens to STP coming to the family Bible study because i don't go with him to his Saturday NIGHT church services or Sunday morning services!!!!! DUH!!!! I started the at HOME BIBLE STUDY CUZ I CAN"T HANDLE THINGS LIKE THAT!!!!

i tried to tell him (as i lay there) how he doesn't understand what it's like to not be able to handle noise or EVENTS and how doing just ONE thing is EXHAUSTING ...or how my muscles ache every freakin day and feel so tired!!

YOU KNOW WHAT HE SAYS TO ME (as he CUTS me OFF)??? "AND YOU DON"T THINK I GET THAT?!" then walks out slamming the door!!!!!!

i was too tired to say or do anything i just laid there. otherwise i would have said "IF YOU WERE THE SAME AS ME AND HAD THIS< YOU WOULDN"T BE ABLE TO WORK !!! I DON"T CHOSE TO BE THIS WAY!!!!" GRRRRRR

and then guess what the other kitten does as i'm gettin ready for bed?? he PISSES ALL over the bed!!!!! so we had to strip everything down and start washing it all as i slept on towels and an old pair of sheets!!!

GRAHHHHHH!!!!! thanks for letting me vent.... sorry it was long

ps. guess what my mother says to me this morning??!!! "ARE YOU COMING TO CHURCH WITH US THIS MORNING?" do you think AFTER HE SAID THAT SHIT, I WOULD WANT TO GO WITH HIM ANYWHERE??!!!!?

Sandika 08/09/2009

i'm sorry...family can really be the worst sometimes...or those that are closest to us. my mom informed me yesterday that she just might move because i didn't visit her at her house. nevermind that i have them here every few weeks for dinner...guess that isn't good enough...I MUST GO THERE. I told her that when she was ready to trade my life for hers to let me know and that I had to go. sheesh!

anyway, vent away...and BIG HUG!

deleted_user 08/09/2009

ahhhh family what can I say?! I've had a back week didn't do squat and was in bed all week. all they did was look at me with that look! just like you "I DIDN'T ASK FOR THIS!!!!! " I know they get tired of our situation wish they knew how we feel and what we go through. I just try not to let it get to me...but every once in a while we need to vent..so vent away girl!!!!

bluesun 08/09/2009

thanks for the support... i just needed to vent it somehwre cuz i was so pissed

PeaceN2You 08/09/2009

Family - don't get me started. My only remaining family that I'm close to are my kids, my granddaughter, and Jon. Other than that, my friends are my family that I chose.

bluesun 08/09/2009

he came home from church and apologized. he said he was sorry that he was rude. i hope he some how understands that he and i are NOT the same. he made it seem like if i just "wanted to" i could have done whatever i felt like. like i just have to push my self like he does. whatever.... . i'm sure you all know how that goes.

he said sorry so i guess that's it.

just heard mom say that he got baptized today...

good for him. i guess maybe i should say "i don't want pity. i want UNDERSTANDING." maybe then he might get the picture?

deleted_user 08/09/2009

Understand where you are coming from. Does no good to tell others over and over how bad you feel or hurt, they say you can try and that might make you feel better. grrrrrrrrr. oh well what can I say..

deleted_user 08/09/2009

Sorry you had such a rough day. Hope you feel better soon. Hard for others to be able to feel what we go through and feel on a daily basis so would be difficult for them to understand. And seems like there really is no words to describe it well enough for them to be able to really understand it. I think the thing others find hardest to sink in is that this is not something that happens once in awhile but something we feel and try to cope with every single day from the time we wake till we wake again 24/7... varying in intensiity sometimes but everyday. Some really miserable crap is all I can say. I find sometimes the more a person tries to defend or explain why we can or can not do something the more frustrating it becomes, because for some no matter how you try to explain they will not get it or understand it enough and seems like they get as frustrated as we do. Wish I had the answers.

Take care gentle hugs

CajunTiger 08/09/2009

blue, you know we understand! HUGS and feel better!

deleted_user 08/10/2009

Hear ya sister ! Told my friend I want to go home after she has me stop at yard sales and several stores. I wait in the car. Mind you this was suppose to be my birthday luncheon. She said, you went shopping with your best friend's daughter. I said that was two stores a year ago.This "friend" still doesn't understand what "no shopping" means even after 8 years of explaining it to her. She exhausts me ! I barely can stay awake on the way home after a day with her.

bluesun 08/10/2009

holy cow, ouchy!! lol
that's pretty bad

noreenb 08/10/2009

I definitely relate to family issues. My adult sons are constantly on me about this-i sometimes wonder if its because they don't have a free babysitter as often as they'd like. This may sound mean, but they complain the most when i have to tell them no which is not that often. Also have gotten too much flack from hubby's family although it has been better lately. I think they have given up because they don't seem to be getting anywhere. Sorry you had a bad day! hugs,noreen

deleted_user 08/10/2009

Family starts with an F I think that says it all. I have one brother who is pretty good about understanding but even he has his days. One sister that I talk to on and off no understanding and one brother and sister That I don't talk to at all their chose.

Glad he appologized.

Hope you have a great week.

Hugs

levisgranny 08/10/2009

Hey! Do you guys ever get that look, you know,the one where as soon as you say ANYTHING about hurting, their eyes glaze over and they don't even acknowledge what you just said. My hubby(as much as I love him and as good as he is about me not working and NOT recieving anySSDI either)does that aeverytime I start to say anythi ng about FM. I hate that. I wish I had the look down as good as he does and everytime he talks about work, sports, whatever I would give it to him! Sorry your brother was such a butt! HMPF! Family!!!! Gotta love em! Lol! Hugs to you all! Cheryl

PeaceN2You 08/10/2009

Doesn't sound like much of a "friend" to me - time to lose this one.

bluesun 08/10/2009

yeah... that's my bro. hard to "lose" that kind of person in my life. lol. we can chose our friends but we can't chose our family...

mom asked me last night while i was bustin my ass to cook a LAMB ROAST, if i wanted to go to the EVENING church service!
and the my bro comes in and bugs me about the same, they teamed up on me trying to convince me to go to church with them. that if i go I WILL WALK OUT OF THERE HEALED!

i told em that my illness is between me and God... that if HE wants to heal me, He will heal me. i don't have to go to a pastor (or another human being) to get healed, at least not that kind of healing. other wise if He wants me to live this way then i will live this way.

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