Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
http://discoveryhealthcme.discovery.com/fibromyalgia/ fibromyalgia.html
i was trying to save my own energy my answering 3 critical posts in 1 post, but i will address your post on its own. arent you a lucky girl, you get a post all for yourself. before i even get to the medical issues, i will point out some generic netiquette/online forum points:
just so you know, i didnt start posting on forums last week. over several years, i've observed that the classic response when you are running out of responses to reasoned critique of your viewpoints is to:
1. claim the critic is "upset" by your opinion
2. remind the critic that everyone is entitled to their opinion
3. pretend to wish them a nice day
4. PM your buddies and refer them to the thread, followed by
5. your buddies coincidentally starting to post similar posts
none of which will help anyone to heal their fibro. but it may make you feel better for a day or so.
ok, now onto the medical stuff.
i agree with you on exercise (i was referring to carrie's claim that there was no mention of exercise. you will remember that patient #2 was med free and heavily into exercise?).
dealing with the cause of fibro... the drs acknowledge that science does not yet know the causes of fibro. as practising drs with real patients, they prefer to make practical cahnge with what they do know. if something works for me, i dont care what caused fibro.
as for drugs 'covering up pain' - there are a lot of good reasons to take such drugs. very few people can go med free and i take my hat off to them. i'm no hero, i need meds to get by, for now. i also take them for severe pelvic nerve pain from a separate condition. i doubt anyone could live with that condition without meds.
you use the terms addiction and dependency interchangeably. they are separate things and have quite different meanings. but most people dont want to hear about that. whatever.
while movement/exercise is appropriate for everyone, even tetraplegics, who have a physical therapist move their limbs for them, it is a specific treatment for fibro. almost all fibro patients find it very painful and tiring. you cant possibly know how hard i have found it. but i am willing to open my mind... how willing are you to open your mind about things you find difficult, or do you think you know everything and are always right and everyone else is wrong. i dont think ive ever seen you admit you were wrong about something... but that is your business.
i think discussion is good, if it is reasoned and logical, and if it helps people move forward towards recovery. since you seem to be telling everyone else what is good for them, you must be all better now? so, are you here to try and force people to do it your way... that never works, so why do it. does it make you feel good? thats a pretty sick way to get your needs met, by putting down other people's ways of getting better.
i normally try to avoid getting into 'tennis matches' backwards and forwards about differing opinions on treatment options, but its your black and white, blanket statements that stand out to me. just a suggestion, you might want to put your ideas forward as suggestions, or sharing what has worked for you. people would then be more likely to want to hear it. otherwise, i think you are just in it for yourself. and thats actually sad, for you
My Response:You do seem awfully upset by My opinion !!
2. remind the critic that everyone is entitled to their opinion .. My Response:You Reminded Me that I am entitled...this is true !!
3. pretend to wish them a nice day..My Response: You wished Me A Good day...I wished You one back !! LOL
4. PM your buddies and refer them to the thread, followed by..My Response:{{ ..PM My Buddies ?? who have I PM'd ?? I have PM'd no One concerning this Post...}}
5. your buddies coincidentally starting to post similar posts ...My Response:{{if any of My Friends Feel as I do, this is How They Feel...I have nothing to do with How Anyone Feels...that is Truely Amazing to me that you came up with this List...}} and Really Kinda Funny !
Yeah, and sarcasm against another poster, just because you don't like what is posted is another tactic used on message boards.
You're right in that I didn't watch the 2nd or 3rd part, so what? I was commenting on the 1st video link. When and if, I read part 2 and 3, I'll be sure to comment on them.
I've had fibro for 23 years and an advocate for finding alternate, working solutions for our pain and fatigue. I've posted many positive and helpful things here.
Let me ask you something Mystery, if a doctor posted that his/her patients were cured of their fibro by eating worms, would you still have this same attitude?
research evidence is actually based on patients experience, but it is done in a way that rules out people who dont have fibro, or have 7 other conditions etc, so that the results are not screwed up. its extremely complicated it takes about 10 years training to get good at research design. drs would rather base their decisions on this than case studies because they see it as better for their patients. they do care about their patients. the few bad apples spoil it for the majority who are competent and caring.
i would love to have any of these as my dr, but their fees are probably prohibitive for me. they can only help a few patients, so by making a video for our drs, they can help many more.