oops - link got broken - try this one

http://discoveryhealthcme.discovery.com/fibromyalgia/fibromyalgia.html

wacthing it now - its very good

I have seen this before...it did not Impress me because they are Pushing Drugs, Bandaids, ADs...not getting to the Bottom of things...There is help...the One woman on there is in Full Aroebics...Totally healed cause she won't LET FM keep her Down...all this from a pill that she takes...OK...have Not yet Met One person helped THAT Much from an AD...More then Likely she was Suffering from Depression ONLY...and had the Physical Symptoms of Depression Only, which tend to Mimic Fibromyalgia...

i disagree dakotarose. to me its very balanced, research based and up to date. thank fully most of it was the doctors talking and there were only 3 patient stories, all quite short. they were chosen to give different examples of patients taking control of their own health, and using a combination of several therapies to get improvement. i am more interested in what the research says than hearing individual stories because fibro varies so much.

there is a lot in there i think most of us would really benefit from seeing. i'm just saving the podcast know and will copy it onto cd for my drs and therapist.

one key thing i got from it is they recommend drs use 4 things to treat their patients with fibro:

1. education
2. exercise
3. cognitive behavioural therapy
4. medications

there's a lot more to the video than just drugs. in fact they basically say if you only do drugs you wont get better. i think most of us have found the same thing.

yea...watched the whole Video last year...still Feel the same way...

dakota, youre allowed to feel however you want, it doesnt bother me. i just think people need to watch it for themselves and make up their own minds. have a nice day, M

Thats Exactly what I did...LOL..Hope you have a great day as well...

saw it last year,watched it again now thinking it was something different,s.o.s my opinion of hasn't changed,same chit different day.anyway have a great day.

all I can say is that when I have done all the things that they suggested, I did improve 200 %. when I stop the exericsing I began to have more flares that last much longer. I am now taking 75 mgs of elavail, at bed time with 1 ultram, I seem to have more pain at night, that becomes very intense. as long as I sleep well I keep the pain under control. when I first started physical therapy it knocked me on my butt, but now I am able to pretty much do what I want. most days I feel pretty good.I thank God every night, because I know that I am one of the lucky ones. i started treating this as fm long before my drs. agreed with me that is what I had. as we all know its not just one thing that we do but a combo of things that we do for it. so never give up, I still think its all in the attitude too. best advice I can offer is never give up, do not let the fm win. fight as hard as you can, take baby steps.

My neighbor has it too, and she just lays around for days will not try any physical therapy or yaga complains about how bad she feels all the time. I can not get through to her. her husband is ready to leave her. I have tried to explain to her the more she lays around not doing anything the worse she is going to feel in the end. I still have flares and or bad days, but they do not come as often as they once did. so what I am saying is do what you can, listen to your body, and rest when you need too. but the most important thing is we need rem sleep, when you get the proper rest everything else falls into place.

I really liked this video and this is how I contacted Dr. Clauw (you can see my other post Letter to Dr. Clauw). I liked what he had to say about Fibromyalgia. I actually thought they did do a good job of pushing non-drug treatment options and clearly felt that non-compliance to those non-drug options was a problem. My biggest question about that was the difference between non-compliance and physical inability. There are usually reasons behind "non-compliance" and I think that Dr.'s should help patients work through them a bit more. For instance, my Dr. once set me up with craniosacral therapy, it helped a bit, but I had some transportation issues and stopped going. I let him know that was the reason. Now, I live right down the street and wanted to start again, but they said I couldn't. Well, that wasn't for me, non-compliance. I guess I should have quit my job, put my three month old in full time childcare and sold all my earthly possessions to get enough money for a buss pass or a car to make those appointments every single week, but these are the choices we're faced with for FM.

I talk about this a lot in my paying for FM post. We pay for it in SO may ways besides just the cost of our Dr. visits. The creams, the clothes, the beds, the vacation time of our spouses (and their incomes for that matter), the time of family and friends. The cost is SO high already. I'm desperately wanting to send my child to a Gymboree Class because we just bought a house in a new neighborhood, but there are no little kids around and I feel very isolated. I want to meet other moms with kids his age. But of course the classes are expensive, about $60/week. So is a yoga class. I can choose one or the other. Sometimes it comes down to these tough choices, choosing for yourself or your family and sometimes, I feel it is my families turn to win out you know?

Anyway, overall though I really did think it was a good video.

I want to know what this woman is on and I thgink that she does not have a severe case.

I wasn't impressed with it. No mention of getting lab work done and that B12/D/iron deficiencies etc. can cause widespread pain and fatigue in our bodies, no mention of alternative therapies such as massage therapy, taking supplements, acupuncture, Reflexology and no mention of doing physical therapy exercises to reduce pain.

The "doctor" said that the oldest patient he has seen was 55...well, my mom is 65 and has Fibro. I didn't get why he stressed that this is primarily a woman's illness? What difference does this make?

No mention of what the heck she is taking either! She obviously doesn't have chemical intolerance. Good for her that she is still able to exercise and doesn't let it get her down. It's sounds like she had depression, rather than Fibro. Depression can cause pain and fatigue.

i would be willing to bet money on the chance that most critics of this video only watched the first segment with the first patient story. there were 3 other segments with 2 other patient stories, and in one of them the woman had not taken any meds for 10 years, because yoga, meditation, exercise and personal growth attitude work got better results for her.

i think to question the diagnosis and pain levels of any of the 3 women is the kind of undermining insult that most of us would get very angry about if it was done to us. yet some people are happy to do that to 3 other fibro patients.

um, and the 'doctor' as you put it is one of 3 senior level professors - they would have to have 15 years training and at least another 10-15 years experience on top of that. i may be wrong, but i don't think you have achieved that level of professional ability and endorsement by your peers and employers?

i got pretty far along in my career before fibro made me take several steps back down the ladder, but you know what, after 20+ years of this, i'm ready to have an open mind, change my negative attitude, and follow the recommended exercise program. thats the biggest obstacle my entrenched negative attitude puts before recovery. the video helped me see that, so i am grateful for the chance to see it and get some hope.

There are also different levels of Fibro. Theres 3 levels. From low to severe. Every individual is different.

Ummm..Actually...I promote...Heavily the use of Exercising in Fighting this illness...this Fibromyalgia...I am Med Free...

Alot of us on here have watched the Entire Video...as it is an older one...they are making Exciting Changes...yea, meaning that they are Coming up with many more Drugs...but None that Actually help the cause of the Fibromyalgia, only Cover up the Pain...now temporarily, that is Fine...you need to do what you Need to do to get thru your days...but does the Thought of being on Pain Pills, Nerve Nills, Anti Depressants, Anti Anxiety, Muscle Relaxors, Sleeping Pills, RLS pills for the very Rest of your Life Appeal to you ?? or would you rather they spend their Time {And our Money} on researching What is causing This, and replacing That ??

Taking some of these Meds...thru a Short Term...to help you thru...I can Agree with...but many are not, and becoming Increasingly either Dependent On OR Addicted to...and many are not In fact being helped anyway...Many are like me, Med. Sensative...or Simply have chosen Not to use them, with the Fear of the side effects, or dependency weighing heavily on ones Mind.

Their Advancements are Strictly with the Treatment, Not the Cause of. and Most of these Treatments are Drug based...and Everyone Knows you have to Move, Exercise, makes No matter in What your Ailment is, or if you have No Ailments at All...you have to Move, Exercise, or you are setting yourself up for a Whole Host of Issues that have nothing to Do With Fibromyalgia...

I have staed my Opinion, I am Not Sure Why My Opinion of this Video upsets you so Much Mystery...I am as Entitled to one as anyone on here...have urself a fine day...