Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
what do you do to maintain a "normal" life. i love fireworks, but staying up late kills me because with out at least 8 hours sleep my fibro fog, pain, muscle tension, etc. is soo much worse. how can i maintain my delicate balance to be able to function and have a life? anyone have any good strategies?
If I have to go out to a family outing, I've learned to make a quick get away before I fall apart. Miss the meal, sometimes, but keep my temper. I like to stay in B&B's when visiting grandkids, there's tea all day and snacks. I use their living room for entertaining.
I sleep with Xyrem, (sodium oxybate) and use a vpap machine. Good sleep is crucial for us. Am on a low dose of oxycodone, 20, 4 or 5 times a day and use elevil and prozac for mood balance. It's a hard illness and we all must search for ways to get the maximum of pleasure with a minimum of pain. Good luck to all of us, Abby
1. Do something nice for someone else
2. Do something creative
3. Do something to take care of myself