I read an article by Dr. Oz in O magazine and it was pretty informative. I also wrote him a letter a couple of weeks ago (through his website). I will keep you posted if I get a response.

Heck, we don't need Dr Oz! We need an ABC special, Investigative Report, 20/20, Lisa Ling or other in-depth documentary( sorry, I'm Canadian, not sure what US shows are current)

How about an independent documentary, picturing daily life with FM or other invisible disease. Show the difficulties from a personal point of view, interview doctors, naturopaths, scientists....

I'm with you on that on eScooterMom! Nobody can explain how bad it is until they see someone life it. My dad thinks that I'm faking when I hobble around like a senior citizen. He thinks that we all have the same amount of pain, but the way we handle it is different. I'd like to see how he reacted if he had Fibro!

I agree with scootermom. In the meantime, I forgot to mention that I also wrote to The Doctors and Dr. Phil. It's doubtful I'll get a response, but I figure it's worth a try.

Maybe we should try to do a documentary. I have a degree in radio-tv-film. I'm a little rusty, but it may be worth a try. I also have a JD so I have access to a lot of lawyers who may be able to lend a hand. My best friend is an MD ( a pediatrician) but she may know people as well. Just a thought...

A local morning talk show did a show about how people are, or can be, pain wimps once. A lady with fibro called in and asked how she was supposed to deal with this.. and the doc said, "Oh I"m not talking to people with fibromyalgia, I would never call a person with that a pain wimp" Hopefully he talks to his fellow medical partners often.

Well, since it is FM awareness day soon, maybe we can put something together. How about video clips send in by DS members, sort of snapshots of your daily life, your pill bottles, heating pads, things you can or can't do anymore. DS members must be prepared to have their video published, but could be anonymous, and this will be done outside the DS format. One of us could edit? Then, send it to your favorite local TV station.

Oh, I meant to say, one of us edit several clips to make a story!

WOW, it would be wonderful to have a show about it and not done by someone who does not have fibro.I really think they need more info put out there for people who think we are just faking it or lazy. I know several people who think my pain is not that bad,I even was at a pychiatrist and he was so rude, it was a day I had to use my cane and the first thing that came out of his mouth when I walked in is" why do you have a cane?) I said I have fibro and then he says" I know lots of people with fibro and they don't have canes" I was furious at that point so I said "I know lots of people that have fibro to and don't have canes and some that can't even function" I told him"everyone is different who has fibro you can't just fit us all in a box) Needless to say I never went back to him. Trained people sometimes are so stupid, that really makes me mad.

I have always said I would like to put many people that are in my llife not just Drs and take them and say here you go live in my shoes for a week and then tell me what you think about fibro. as you can see this is a subject that really gets me ticked off at people.
THANK GOD WE HAVE EACH OTHER HERE ON DS :)

I think it's sad that some docs don't even believe in it. I mean, what I've been reading lately, it's a clear cut case of nerves gone wrong!!!

dr oz is an idot IMHO. he dosnt' know much about sever diseases besides cancer.

he thinks sleeping enough and eating right will rid you of fibro

he thinks the MS hug can kill you (it cant it just feels like it)

and so on

he's got his heart attack stuff down and diebetes. but besides that he just reinforces that fibro is in our heads

Dr. Oz, like so many surgeons, is only interested in people with a mechanical problem, like cancer, which an be cut out, or repaired surgically. It's like the story of the blind people who were placed around an elephant and each decided that the animal was different depending on where they were touching. The thing I find to be the funniest thing about him is that he's always wearing scrubs. Ah, The Armor of the Surgeon. What a boob.
I have also read that people with chronic illnesses are often the 'healthiest' people around BECAUSE the eat well, rest and exercise. It doesn't mean that the illness is gone, only that the patient is doing all they can to live the best life they can.
As for me, at this point, I don't care much about who thinks it is real or not. I am glad that it is officially a 'disease' or 'condition' and the friends I have left know that I am ill and what it does to me. As for the rest of them, forget it. I have shed many friends over the years who find it too annoying to deal with me and I say, 'Good riddance.' I dont' have time for them anyway. The friends who stuck with me were probably the only real friends I ever had anyway.

Many years ago, I saw a show on TV, can't remember what, but it was one of the news-magazine types of shows. It focused on a woman who was so ill that she was unable to wear clothes. She lived in her bed with only a sheet to cover her. I have had certain kinds of fabrics be a problem, but thank God have never had that issue with all clothing. What a horror that would be. This woman was presented in the show with a very sympathetic attitude, which added to the authenticity of the show for me.

Lastly, there is a documentary, 'Living with Fibromyalgia', which you can download for $9.95 here:
http://www.livingwithfm.com/
There are also pieces of it on You Tube.

Dr Oz has no experience as a Scarecrow, Tin man, Cowardly Lion or Flying monkeys. We fibroteers do.
The Wizard does not know all.

I know the Doctors believe it but I tried to send them an email about a month ago and havnt heard anything back

mxvee, indies are really capturing interest... you should do one!

Yes I did!!!! I'm a healthy girl too with Fibro but healthy diet and exercised for his perscription for it?.......He doesn't know jack squat!! And I like Dr Oz.....now The Doctor's I'd be willing to go be on the show just so I can see the cute doctor!!!!