END THIS SILLY THREAD AND LET THE CREEPY WEIRDOS FLUTTER DOWN THE PAGE INTO OBLIVION

NO MORE PLEASE

sorry folks,im just wondering if this hellraiser should have his nappy put on so he can crawl back into bed.its far too late for him to be up!!!now,little boy,Go AWAY!!!

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I was DX w/BET in 2005, but never put on meds. It wasn't until symptoms progressed, I was upgraded to Parkins(PD) and am taking 25/100mg Sinemet 4x's day. My new Internist added 10mg Inderal 3x's day because Sinemet peaks and then wears off, Inderal helps keep the tremors at bay. I am finally beginning to read my own handwriting. Another advantage, it is also taken to eleviate Anxiety and it works, most of the time. As for blood pressure it hasn't done anything there, but then it sounds like I'm on a pretty low dose.

BTW, thanks Doug for posting this. I didn't know about alot of this information. SG

I was diagnosed with ET recently. I've been shaking and jerking for about 2 years now. I was on Propanolol for all this time for my heartrate. But then my doctor told me a couple weeks ago that Pro. was taken for ET. I was on 50? mg. and he upped it recently to 120 mg. My shaking and jerking has gotten so bad, it's like I'm not on anything to help it. I can't write, I can't drive without slamming on the break (pretty funny actually) and I can't carry any liquids in my right hand. It seems to be mainly on my right side (except for my head and neck). I feel as though my body is spiraling out of control. Is this normal????

Does anyone know if Inderal is another equivalent of Sinemet or Requip? I tried the Requip, but couldn't tolerate the Side Effects. Thanks,
~Tonya

Tonya,
I take both Sinemet and Inderal. I was tried on Requip too, but it had no effect on my PD. Sinemet has levadopa and is to increase dopamine levels. Inderal is a beta-blocker to help with blood preassure but also is helpful for tremors and anxiety. Sure has been helpful for me. I'm no doc but this is my understanding.

I think i have ET. I have a question for those using inderal. Do you take this med every day? how long will its effect last and for those who stopped using it, why?

When I use Inderal is makes me tired and I have great difficulty climbing stairs or doing strenuous activity without gasping for breath. I normally have low blood pressure and I'm sure Inderal is just making it that much lower. But it is greatly affecting my life and inability to exercise or be very active. I've tried a couple generic formulas but they really are not as effective. I take one 60mg tablet a day. Any ideas??

I've had ET all my life and I could deal with it. Until I hit fifty, when I founnd myself unable to sign my name.
My doctor prescribed primidone. It takes a month to get used to. That month is long list of side effects from Hell. I was on primidone for 8 months.
My doctors could see I could not go like this. So he put me on propranalol (Inderal)
and I'm glad he did. I've felt no side effects and the stuff does work.

Took Inderal at age 62 for five weeks (I don't remember the dosage) and I had no lessening of tremor, so I quit it.

It caused a feeling of pressure inside the top of my head.

And my tongue nearest my throat felt as though it was stiffening up.

E T story poems: http://www.geocities.com/lc22002/Tremor_Tales.html

I'm 51, have had BET for as long as I can remember, and have been on increasingly larger doses of propranalol up to 80mg (ER) plus 20-40mg as needed every day -- which didn't work anymore for me. Soooo... I went to a new neurologist who put me on Topamax, 50 mg in the morning, 25 mg at bedtime. And it is wonderful. My shakies are so much better! Side effect is weight loss (oh well). It also affects your recall of words to a certain extent. I was on 100 mg for awhile and when I typed, words didn't always come out the way I intended. 75 mg seems to do the trick for me.

I was on Inderal 80 mg (1 20mg 4 times per day). The 4th 20mg prevented me from sleeping so they changed the script to an 80 mg time released long acting which caused some crazy side effects. Some folks cannot tolerate any long acting -time released medications whether over the counter or prescriptions. Other than the issues just mentioned I was pleased with their ability to block the tremors. I led a full life without the irritation and embarrassment. After some major brain issues the tremors have returned. Hopefully my PCP will start me on another regiment.. (see explanation of health issues on my profile)

I use inderal as a prn when I'm feeling shaky and need to be tremor-free for something going on (usually at work). It lasts about 8-10 hours, and leaves me feeling tired and with a low libido for a few days.